John - Your post touched my heart. My husband and I are also fighting this fight right along with you, and also planning to do all of those things that we know best to do at the moment. I get upset too at times, but lately it is much more of a joyous outburst, as I have been battling this for over 15 years. I would definately try inclining your bed. It can't hurt! We did ours and I think it really does help some.
Cheer - It's so nice having people on here who understand all of this. It's so much to take in and obviously just a waiting game and a call to action to get others on board. You and your husband are truly an inspiration. I hope you're thinking of writing a book someday!
Ozark - I am truly disappointed for you! We have to look at it as a minor setback though, with much more opportunity on the horizon.
Lora - The clinical study is such a great sign. I have had my share of pity parties, just because I knew that my HMO would never approve going out of state. I guess this means that the possibility of a clinical study in my own state is getting closer to being possible, so I have to be glad for that.