jamit wrote:I just want to say that Stanford is not open for business anymore. I have been waiting for the phone call from Dake for a couple of months and also got the email that they will not take more patients for now and that I can enroll in the clinical trial.
The stent dislodging and racing to the heart causing open heart surgery and the other problems with stenting certainly made me hesitant and I welcome the clinical trial. I suspect that is probably part of the reason Stanford is not taking more patients. Standford was out of control anyhow, I mean not answering emails and returning calls only if one bombards them really does not work for me anyhow.
Having no progression in 18 months by the way does not show anything unless in a clinical trial setting, I have had zero progression on many occasions much longer than that without being on any drugs during my tons of years with MS.
I will certainly participate in the clinical trial if I qualify and hopefully they will come up with better stents, protocols and procedures.
C'mon, this is not true. Stanford is definitely open for business, they just have too many customers! It's like the Yogi Berra saying that it's so crowded nobody goes there anymore! Alex was very busy, it took three months for my appt to get scheduled for Feb. I could have gone in Jan but it worked better for my wifes schedule in Feb. I did not bombard them with calls I was actually thanked for being patient.
It sounds like from another post I read they are doing a clinical trial for a few months but progress is still being made.