I feel desperate many days also and wonder if there is every an end, but reality is reality. I read somewhere, "My Serenity is in direct proportion to my expectations." Promoting and selling CCSVI is sad and giving many people a false hope of a quick fix. Let's wait a year and see where it is, hopefully it will give new treatment methods.
I am not sure what waiting a year is going to do. New treatment methods have to be used on patients, not the little mice. At some point in time real people have to step up to the plate. This has been true with all the drugs that have been tested in Phase 1 thru Phase 3 trials -- you have to have people!! The stenters have been excited to share their experience whether it be good or bad. I do not believe we have given false hope. Read the tracking thread - read Lew's blog, read Marie's thread, read my thread, read about Radeck, etc. etc. --- we have had problems and we have been honest about them. And, yes we also (sorry, Bob) have had improvements.
You are correct - the media has hyped this as a cure. I think all of us who have had the stent procedure have said NO, it is not a cure. Too bad the media doesn't read our anecdotal reports.
Also, you wrote
.) Dr. Dake has stopped doing the stents for now. They are preparing a clinical trial. There has been many ethics questions regarding stenting patients without a clinical trial here in the US
Stanford is open for business; those who were scheduled will get to see Dake. Yes, Dake has been writing a clinical trial for many months based on the study we "stenters" have been involved in. My hope is that he has learned from the pioneers and this knowledge will help to move his clinical trial forward and will be approved by the IRB without complications. We have known since July that Dake was going to stop taking "all comers".
The Stanford trial is really good news. I know of a possibility of another trial back East -- cannot give further information yet because it has not been announced.