Two other things that came to mind when I read this thread:
- The Buffalo study design not only addresses the concerns expressed about previous study design, but in their press release from Buffalo earlier this fall, the top officials from the University hospital made a comparison to ulcer research. That is Nobel Prize of Medicine award-winning research. As many of us noted at the time, hard to imagine they are sitting on weak or negative data with that kind of comment.
- And, for me, having CCSVI addressed through stenting was never about how it would feel right away. It's about minimizing or stopping progression. No one - -not that Dr in the UK, nor Dr. Zamboni nor Dr. Dake - - knows (yet) what it will mean for progression. For me, it made sense to try, to have the blood flowing while they research and argue for years.
Having said that, I also should point out what I have said previously: to my surprise, I actually have felt a difference. When I was still in the hospital at Stanford, I felt that my energy and intake of the world became clearer, like flipping to HD. Yes it could be a placebo effect, and if that is true, then it should wear out at some point. It hasn't yet.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri