Actually, I never have been member of the UK MS Society and get very annoyed about how they constantly claim that people with MS live a nearly normal lifespan, disregarding how this is lived.
Luckily I was able to put my MS behind me with doxycycline, roxithromycin and metronidazole, trialed years ago, although not for MS.
I was wondering how long these CCSVI procedures would be allowed to go on without trials: remember that one person has died from a stroke on her way home from a procedure, which although it might have happened anyway, the bleeding couldn't be stopped because of coumadin and not all people die from strokes or are permanently disabled by them. Now one person has undergone open heart surgery because of a migrating stent.
At least you know that something that might help you is n the offing, but in the meantime you could always try what I did.
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.