Myelin Repair Foundation Shares Optimism for CCSVI

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marcstck
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Myelin Repair Foundation Shares Optimism for CCSVI

Post by marcstck »

This was posted on the Myelin Repair Foundation's blog today, by Rusty Bromely, the gentleman I spent three hours talking to yesterday at a café here in New York. Mr. Bromely is a brilliant and gracious man, and I'm still trying to figure out the best way to thank him (and Hollie Schmidt from The Accelerated Cure Project) for taking the time to meet with me.

Was the timing of this MRF post a coincidence? Don't want to blow my own horn or anything...

http://tinyurl.com/yae6erq
LR1234
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Post by LR1234 »

Well done Marc! The more people that know about CCSVI the quicker it can be investigated:)

How are you doing these days? Any more news from NIH?

L
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bestadmom
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Post by bestadmom »

No coincedence, this is statstically significant! Blow your own horn. I'm happy they contacted you.
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mrhodes40
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Post by mrhodes40 »

Excellent! I am glad that you had an opportunity to speak with those people and give them the information that you have picked up.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Loobie
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Post by Loobie »

Marc,

Toot that dude! I can almost guarantee if you speak like you write, that you were a big part of his understanding this like it really is.
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cheerleader
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Post by cheerleader »

Ditto on Lew's comment, Marc. I know your meeting had a specific affect. Also appreciate Rusty's mention of the FB page. Terrific job getting the information to this pro-active charitable foundation.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
jr5646
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Post by jr5646 »

Nice job, Marc... the more attention ccvsi gets, the better... THANKS

Wouldn't it be cool too if he were related to Ian -

http://www.thisisms.com/fsearch-author-bromley.html

Oops, different spelling !
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Sharon
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Post by Sharon »

Great job, Marc! Glad you were able to speak with Rusty Bromley and to see that he posted something from the MRF. The MRF blog has had a few comments about CCSVI since summer, so it is nice to see that it is now getting recognition.

Sharon
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Johnnymac
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Post by Johnnymac »

Fantastic man
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ozarkcanoer
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Post by ozarkcanoer »

I found this on The Myelin Repair Foundation website. Thought you would all be interested :D :D :

http://myelinrepair.org/blog/?p=1466

ozarkcanoer
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marcstck
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Post by marcstck »

ozarkcanoer wrote:I found this on The Myelin Repair Foundation website. Thought you would all be interested :D :D :

http://myelinrepair.org/blog/?p=1466

ozarkcanoer
wow! That was nice of them...
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MS_mama
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Post by MS_mama »

guess they blew your horn for you! :D

But seriously, what a great, down-to-earth attitude they have to sit down with someone like you who is actually dealing with MS and knows a hell of a lot about it, and get your take. That's awesome. I think they'll get some of my donation dollars this year...
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
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