Myelin Repair Foundation Shares Optimism for CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Myelin Repair Foundation Shares Optimism for CCSVI

Postby marcstck » Sat Dec 05, 2009 1:02 am

This was posted on the Myelin Repair Foundation's blog today, by Rusty Bromely, the gentleman I spent three hours talking to yesterday at a café here in New York. Mr. Bromely is a brilliant and gracious man, and I'm still trying to figure out the best way to thank him (and Hollie Schmidt from The Accelerated Cure Project) for taking the time to meet with me.

Was the timing of this MRF post a coincidence? Don't want to blow my own horn or anything...

http://tinyurl.com/yae6erq
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Postby LR1234 » Sat Dec 05, 2009 3:05 am

Well done Marc! The more people that know about CCSVI the quicker it can be investigated:)

How are you doing these days? Any more news from NIH?

L
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Postby bestadmom » Sat Dec 05, 2009 7:23 am

No coincedence, this is statstically significant! Blow your own horn. I'm happy they contacted you.
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Postby mrhodes40 » Sat Dec 05, 2009 7:27 am

Excellent! I am glad that you had an opportunity to speak with those people and give them the information that you have picked up.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby Loobie » Sat Dec 05, 2009 8:07 am

Marc,

Toot that dude! I can almost guarantee if you speak like you write, that you were a big part of his understanding this like it really is.
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Postby cheerleader » Sat Dec 05, 2009 9:08 am

Ditto on Lew's comment, Marc. I know your meeting had a specific affect. Also appreciate Rusty's mention of the FB page. Terrific job getting the information to this pro-active charitable foundation.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby jr5646 » Sat Dec 05, 2009 10:11 am

Nice job, Marc... the more attention ccvsi gets, the better... THANKS

Wouldn't it be cool too if he were related to Ian -

http://www.thisisms.com/fsearch-author-bromley.html

Oops, different spelling !
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Postby Sharon » Sat Dec 05, 2009 3:41 pm

Great job, Marc! Glad you were able to speak with Rusty Bromley and to see that he posted something from the MRF. The MRF blog has had a few comments about CCSVI since summer, so it is nice to see that it is now getting recognition.

Sharon
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Postby Johnnymac » Sat Dec 05, 2009 4:45 pm

Fantastic man
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Postby ozarkcanoer » Mon Dec 07, 2009 6:47 pm

I found this on The Myelin Repair Foundation website. Thought you would all be interested :D :D :

http://myelinrepair.org/blog/?p=1466

ozarkcanoer
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Postby marcstck » Mon Dec 07, 2009 7:43 pm

ozarkcanoer wrote:I found this on The Myelin Repair Foundation website. Thought you would all be interested :D :D :

http://myelinrepair.org/blog/?p=1466

ozarkcanoer


wow! That was nice of them...
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Postby MS_mama » Mon Dec 07, 2009 8:44 pm

guess they blew your horn for you! :D

But seriously, what a great, down-to-earth attitude they have to sit down with someone like you who is actually dealing with MS and knows a hell of a lot about it, and get your take. That's awesome. I think they'll get some of my donation dollars this year...
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
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