This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 18, 2013 11:06 am

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 1 of 1
  [ 12 posts ] 
  Print view Previous topic | Next topic 
Author Message
marcstck
PostPosted: Sat Dec 05, 2009 1:02 am 
Offline
Family Elder
User avatar

Joined: Tue Jan 03, 2006 4:00 pm
Posts: 554
This was posted on the Myelin Repair Foundation's blog today, by Rusty Bromely, the gentleman I spent three hours talking to yesterday at a café here in New York. Mr. Bromely is a brilliant and gracious man, and I'm still trying to figure out the best way to thank him (and Hollie Schmidt from The Accelerated Cure Project) for taking the time to meet with me.

Was the timing of this MRF post a coincidence? Don't want to blow my own horn or anything...

http://tinyurl.com/yae6erq

_________________
Marc
www.wheelchairkamikaze.com
Top
 Profile  
 
LR1234
 Post subject:
PostPosted: Sat Dec 05, 2009 3:05 am 
Offline
Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1419
Location: California
Well done Marc! The more people that know about CCSVI the quicker it can be investigated:)

How are you doing these days? Any more news from NIH?

L
Top
 Profile  
 
bestadmom
 Post subject:
PostPosted: Sat Dec 05, 2009 7:23 am 
Offline
Family Elder
User avatar

Joined: Mon May 18, 2009 3:00 pm
Posts: 722
Location: CT
No coincedence, this is statstically significant! Blow your own horn. I'm happy they contacted you.
Top
 Profile  
 
mrhodes40
 Post subject:
PostPosted: Sat Dec 05, 2009 7:27 am 
Offline
Family Elder
User avatar

Joined: Thu Sep 23, 2004 3:00 pm
Posts: 2066
Location: USA
Excellent! I am glad that you had an opportunity to speak with those people and give them the information that you have picked up.

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


Top
 Profile  
 
Loobie
 Post subject:
PostPosted: Sat Dec 05, 2009 8:07 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 11, 2006 3:00 pm
Posts: 2197
Location: Dayton, Ohio USA
Marc,

Toot that dude! I can almost guarantee if you speak like you write, that you were a big part of his understanding this like it really is.
Top
 Profile  
 
cheerleader
 Post subject:
PostPosted: Sat Dec 05, 2009 9:08 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4676
Location: southern California
Ditto on Lew's comment, Marc. I know your meeting had a specific affect. Also appreciate Rusty's mention of the FB page. Terrific job getting the information to this pro-active charitable foundation.
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
jr5646
 Post subject:
PostPosted: Sat Dec 05, 2009 10:11 am 
Offline
Family Elder

Joined: Thu Nov 26, 2009 4:00 pm
Posts: 185
Nice job, Marc... the more attention ccvsi gets, the better... THANKS

Wouldn't it be cool too if he were related to Ian -

http://www.thisisms.com/fsearch-author-bromley.html

Oops, different spelling !
Top
 Profile  
 
Sharon
 Post subject:
PostPosted: Sat Dec 05, 2009 3:41 pm 
Offline
Family Elder
User avatar

Joined: Sun Nov 07, 2004 4:00 pm
Posts: 1228
Location: Colorado
Great job, Marc! Glad you were able to speak with Rusty Bromley and to see that he posted something from the MRF. The MRF blog has had a few comments about CCSVI since summer, so it is nice to see that it is now getting recognition.

Sharon
Top
 Profile  
 
Johnnymac
 Post subject:
PostPosted: Sat Dec 05, 2009 4:45 pm 
Offline
Family Elder
User avatar

Joined: Wed Oct 18, 2006 3:00 pm
Posts: 214
Fantastic man
Top
 Profile  
 
ozarkcanoer
 Post subject:
PostPosted: Mon Dec 07, 2009 6:47 pm 
Offline
Family Elder
User avatar

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
I found this on The Myelin Repair Foundation website. Thought you would all be interested :D :D :

http://myelinrepair.org/blog/?p=1466

ozarkcanoer
Top
 Profile  
 
marcstck
 Post subject:
PostPosted: Mon Dec 07, 2009 7:43 pm 
Offline
Family Elder
User avatar

Joined: Tue Jan 03, 2006 4:00 pm
Posts: 554
ozarkcanoer wrote:
I found this on The Myelin Repair Foundation website. Thought you would all be interested :D :D :

http://myelinrepair.org/blog/?p=1466

ozarkcanoer


wow! That was nice of them...

_________________
Marc
www.wheelchairkamikaze.com
Top
 Profile  
 
MS_mama
 Post subject:
PostPosted: Mon Dec 07, 2009 8:44 pm 
Offline
Family Elder
User avatar

Joined: Mon Nov 09, 2009 4:00 pm
Posts: 107
guess they blew your horn for you! :D

But seriously, what a great, down-to-earth attitude they have to sit down with someone like you who is actually dealing with MS and knows a hell of a lot about it, and get your take. That's awesome. I think they'll get some of my donation dollars this year...

_________________
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 1 of 1
  [ 12 posts ] 

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. MYELIN REPAIR

[ Go to pageGo to page: 1, 2 ]

dania

21

1959

Sun Aug 21, 2011 6:08 am

fee001 View the latest post

There are no new unread posts for this topic. CCSVI foundation???

[ Go to pageGo to page: 1, 2 ]

mshusband

21

3160

Mon Jun 07, 2010 6:52 pm

garyak View the latest post

There are no new unread posts for this topic. A second CCSVI foundation?

frodo

4

1371

Sun Dec 05, 2010 7:31 am

VeeBee View the latest post

There are no new unread posts for this topic. CCSVI foundation walk successful

Cece

1

616

Thu Apr 21, 2011 9:29 am

bluesky63 View the latest post

There are no new unread posts for this topic. myelin and ccsvi

sbr487

10

1423

Wed Aug 04, 2010 1:45 pm

1eye View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: