News: AS with all Change some will not embrace this new paradigm shift. By "keeping the heat to the feet" we the Public will ensure the Transparency & Integrity of all things CCSVI.
"from prevention to symptom management to repair" Is the Societies thought process impaired. why do i not see the word CURE
Folks this FAQ was released on Dec.2,2009, The Societies position is that they have NO POSITION regarding CCSVI. "rigorous peer-review process that involves leading MS research experts from around the world" Mr Savoie is now on record stating the Society in the end "Just Writes The Cheque" It will be up to a bunch of MS GUYS to determine if CCSVI is relevant.
Houston we have a problem AGAIN, these are same MS GUYS, a
http://ccsviresearchtransparency.com/in ... ?topic=8.0
autoimmune, drug based research group, made up of hospital, specialists and all their support groups. Their whole being is Pharmaceutical. Dr Zamboni's research is a direct assault on that whole way of thinking. The shift will be from a drug therapy to a surgery. If CCSVI is the Holy Grail we are telling the MS GUYS you will be out of work.
Folks we can not let Big Money stick this incredibly important research into a closet. 100% Transparency NOTHING LESS. Further we need to tell the Society "ITS OUR MONEY"
If the Society does not change the way they think how will we expect the rest of the MS research community to shift gears.
Date: 06/12/2009 7:12:34 AM
Subject: CCSVI 100 % Transparency-Attention Mr Savoie
President and chief executive officer
President, Ontario Division
"As President and CEO of the MS Society, you published a new CCSVI FAQ regarding the upcoming Competition re: CCSVI research grants. You indicated that in essence the Society has no role other than writing the cheque. That a review board will determine the mandate,scope, parameters, of this Incredibly Important Research. Since We/Society is paying the tab than we should be able to expect nothing less than the following, after all it would be prudent business.
I request the following.
Publish the who what when where & How of this soon to be released Competition.
Publish the names of this esteem Review Board
Publish the content of this Competion, we would like to know exactly what is being proposed (researched)
Publish whom was invited and or submitted a proposal. all proposals to be made public.
Publish periodically research updates as per this Competion. (milestones)
Finally, ANYTHING less than 100% Transparency will not be tolerated or considered Acceptable. The Societies mandate is to Represent those that are afflicted,care & support the many 10's of thousands of Canadians with MS.
"it is our mission to be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life."
I assure you that I and my many friends & family (with the power of the Internet) will not allow this to be pigeon holed, put into a closet, minimized. WE will do our job, with 100 % Transparency our fund raising efforts will continue, we will support the Society because it Supports Us.
Sir, anything less than 100% Transparency will seriously strain this relationship.
Looking forward to your response.
http://ccsviresearchtransparency.com/in ... ;board=5.0
Does the MS Society currently fund research into CCSVI?
The MS Society of Canada will issue an invitation for research operating grant proposals on CCSVI related to multiple sclerosis from qualified investigators based in Canadian institutions. Proposals will be evaluated for their scientific merit and relevance to the field of MS.
The competition will open on December 9, 2009.
8.What is the selection process to receive operating grants related to CCSVI and MS and how will approved grants receive funding from the MS Society?
The MS Society of Canada's MS Research Program invests only in research that is of the highest level of scientific excellence and relevance to MS. All research grants are adjudicated through a rigorous peer-review process that involves leading MS research experts from around the world. This process is precisely designed to identify research that will most ably investigate the cause and cure for MS on numerous fronts - from prevention to symptom management to repair. The Medical Advisory Committee makes recommendations for funding through the MS Research Program and based on available resources generated through donations, grants are awarded. Although the MS Society is unable to direct donor giving to any one specific research grant, such as the newly established CCSVI competition, all donations to the MS Research Program help ensure that recommended grants are awarded funding. This process also ensures the continued integrity of the program and upholds the mandate of the MS Society of Canada to excel in our effort to end MS.
I have been on this earth a long time and involved with MS (caregiver, wife chronic progressive for 20 years) I know when I am having smoke blowen up my as-. all IMHO.
-keep the heat to the feet-
http://ccsviresearchtransparency.com/in ... topic=26.0