selkie - I am sure that I read that on this forum (all I've been reading - + links - for weeks now.
I completely understand your dilemna, but it is so close. I try not to give advice, because I am just an anonymous schmuck on the Internet, but maintain what has maintained you. If you are close to not being able to travel, it is time to pull out all the stops - get any doc you can on it to get treated in your locality. Perhaps if you did call Poland, and asked for expedition..., but I can't advise on that.
We have incredible ability to survive, and I am sure that mentality and belief are the most important. Jill Bolte-Taylor, and many others (not the least those who have had treatment for CCSVI), have also shown that we have an incredible capacity in recovery. I know that we can do it. I know that we all can, with the proper support. One month ago, most of us had just a grey unknown, now everything has changed. Take heart.
My name is not really Johnson. MSed up since 1993