Got a wonderful call today from my across town neighbor. Our sons are school friends and we have many mutual girlfriends. I referred her to Stanford last summer. D. has been in a wheelchair for a couple years, tried all the chemo drugs, everything, and was slipping fast. She had 4 stents placed in July. At that time, they did an MRI and found a "growth" on her brain...not a tumor. D. said that all the neuros at Stanford looked at it and didn't know what it was, but they would keep their eyes on it. When she went back in October, three months after her stenting, it had disappeared.
Dr. Dake told D she was probably the worst case he's treated. She had venous stenosis throughout her body. D. got 2 more stents placed last trip and she called me today to check in and thank me. Her bladder, spasms, energy and stiffness have all improved. Her voice is stronger and she can take deep breaths. She is doing physical therapy and hopes to get more mobility. She hasn't progressed and for the first time in a long time feels she is actually improving. I told D. I really appreciated her checking in. She wanted to post on the tracking thread, but isn't on the computer much, so she asked if I'd pass along her story. She's happy to be at home, healing and with a sense of hope.
I hope Dr. Dake has included her in his written paper. He's in press now, already accepted. I'll have details on that later.
Thanks, D. You gave me a huge infusion of hope today. Keep healing. You are an inspiration-
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09