My dear i have just watched your video, Bravo, you are a true warrior.
Greed, Money, Period. Lets pretend you are an employee of the MS Industry, you do not suffer from it , you are not a direct care giver, you no longer wake up in the middle of the night and ask Why Me.
You go to your performance meetings, lets start of with the societies, fund raising, fundraising, fundraising. Research depts. budgets,budgets,budgets. Pharma, whats in the pipeline, when will phase 2 be completed we need to apply for sanction, get out there and sell,sell,sell. Tell them whatever they want to hear. Stockholders are getting edgy.
You are so right i remember being next to my wife (progressive 20 years) as the neuro went from her bed and saying outloud to her "you know its the MS, its progressive, maintenace is all we have to offer. (My wife had a career, married,)
He than sits next to this wide eyed 17 year old and announces that she has MS, more tests needed to be done, the good news was she is a prime candidate for the latest & greatest RR drug therapy.
My wife and I spent the next 2 days explaining to her & her family that MS has many different faces & that my wife unfortunatly was one of the 5%, She would live to lead a very normal life, not to fear. i will never forget the look of horror on her face. By the way my wife heard those same words from someone when she was originaly diagnosed.
Like you when researching CCSVI it just made so much common sense. Dr Zamboni has actually put a face on MS by stating severity had a direct correlation to the #, severity & location of the blockages.
Blew me away. We live in canada & there the Societie announcmnet of possible research into CCSVI as far as i am concern was nothing other than damage control. Shut done the negativity, we do not need the bad press.
i like you will not allow this to be hijacked.
Please see my site. I believe that Societiy is our voice, they exsist because of us, they spend our money, we allow that to happen. BUT
anything less than 100% Transparency will cause us to fail. There is too much money, greed, entrenched ideologies.
We have the biggest fight of our lives in front of us. The internet is our weapon, Education will be our victory
-keep the heat to the feet-