DITTO!! Same with me, same with my daughter. He was treating a vascular condition, not MS.Dr. Dake agreed to open those veins, and never made any promise or statement as to the relationship to his MS.
Sharon
jr5646 wrote:Hi Lora... I initially felt getting neuros involved was going to be a bad idea, but now I'm completely convinced they need to work together.
I think you are wrong about Steinman. Please take a look at his CURRICULUM VITAE:
http://med.stanford.edu/profiles/Lawrence_Steinman/
1) Practically most, if not all all ms research is looking at drug therapy..
2) Let's assume CCSVI pans out for a second... The mechanism that allows an excess buildup of iron in the cns is repaired (no more blockage / iron buildup). Is the BBB damaged too? How do we remove the excess iron and the immune response from the cns? If the iron is removed, will the immune cells doing cns dammage simply go away or do they continue doing damage? Can any residual damage be repaired? All the more reason to have a neurological component involved.
3) Have you reviewed some of this guys work? Just scan the titles, of almost 500. Extremely impressive...
4) Isn't Dake doing research for a stent manufacturer?
5) Maybe he started his own company because he was sick of big dictating pharma.
6) Even though Steinman's developments in monoclonial antibodies led to the development of TYSABRI, I believe he adamently warned folks about the dangers and advised not to use it.
7) Bayhill is working on a vaccine to re-train the immune system in conjunction with a vascular drug:
http://www.medicalnewstoday.com/articles/80011.php
Plus, I think he's in the same building as Dake ! and if this guy is as good as he looks at getting funding, they'll need it... the research isn't going to happen for free, ya know !
Who knows, the clinical trial (when and if does depvelop) may simply focus in on the newly DX and hang us all out to dry... I can only hope and pray not.
-John
About ethics:Sharon wrote: DITTO!! Same with me, same with my daughter. He was treating a vascular condition, not MS.
Sharon