nice work. This is how we did it at Stanford, using headache and edema (swelling) as indications of venous insufficiency. No mention of MS. THEN, when the MRV showed no jugular return, the surgery was covered by insurance, since 50% venous occlusion or higher is covered by insurance, due to KNOWN risk of damage to the organ the veins drain. NO MENTION is made of MS, and honestly, why should there be? My husband had venous occlusion and it created something that looked like MS in his brain...remember, MS is a disease of EXCLUSION.
SO glad you pursued this with the neuroradiologist. THIS IS THE WAY, people. These doctors understand the jugular veins and how they impact brain health. They have the tools and the knowledge and know how to treat. Way to go.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09