This Is MS Multiple Sclerosis Community: Knowledge & Support

Lost in amongst all this hysteria a little is how much good Dr. Dake has done, how much he cares and has essentially stopped everything else going on to help MS patients.

Being at the vanguard there are of course risks and ups and downs.

It looks like its going to take a while now for those who weren't in the first round and I feel for you all.

Waiting is torture and to have a potential game changing treatment known but just out of reach must feel terrible for some.

BUT the genie is out of the bottle, it won't be put back in easily and as more and more work comes out in Europe, Canada and elsewhere the wave will build.

I know that's not what people want to hear necessarily but there is hope. The truth always outs.

So thanks everyone who's risked this early, thanks Joan, Marie, thanks Melissa for trusting me and trying it and most of all thanks to Michael Dake for his hard work and compassion.

The popularity of this board has exploded and I barely recognise any of the names any more so I don't know where a lot of you are up to but good luck in your fight against this congenital venous condition and be well all.

I'll see my homies on bookface and update at 1 year for Melissa (July 7th 2010).

I've not logged in to TIMS in a while and just noticed a number of PM's - I won't be checking this anymore and the email alert system doesn't work so if I don't get back to you I'm not being rude, just moving on.

I wish the same for all of you too.

Amen to that!

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My name is not really Johnson. MSed up since 1993

Jamie -

You are so right! Thanks to Dr. Michael Dake for taking a chance with us early "stenters". For his caring and understanding, for his meticulous work.

You and Melissa have been true pioneers for the MS revolution - first the HyC treatment, then on to CCSVI -- so, thank you.

BTW - I did send you a PM about your upcoming trip to Colorado. Hopefully you received.

Sharon

Thank-you Dr Dake for having the guts to be a pioneer and for trying to help us MS patients.

Thank-you for reading my MRV and offering to help me x

Thank you Dr Dake... and I haven't even had any scans, let alone the procedure. I have hope now that I didn't have before.

ozarkcanoer

Jamie...miss you, buddy.
Things have become sort of surreal on here, but I'm glad to know Mel is good and you're moving on. Thinkin' it's time to do the same (but you know I have a hard time sleeping when someone is wrong on the internet.)

and Dr Dake...thanks for talking to a housewife from southern California, and treating her with respect. Thanks for reading my e-mail and forwarded research with open-minded curiosity and a healer's heart. My awake husband says thanks, too. We owe you alot.
Joan

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Thank you for all you have done, you do and will do.

Cheers

Thank you, Dr. Dake!
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Thank You,Dr Dake! and please don't leave us alone in this fight!

Gotta' throw my thanks in there too!!

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http://myhopefuljourneyintoactualmsreco ... ogspot.com

Cheerleader,

Don't leave us too. I know this is difficult for you and very time consuming, but we need your knowledge and the hope you give us.

I received the e-mail from Alex today saying things were on hold until early 2010 when they will be conducting a trial. That's okay, except I too am worried that my husband will not be accepted because he is SPMS.

A big Thank You! The energy from your caring for us in need is exponential. You have brightened the future to all of us here. Peace and Health, Mark

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Plant a BIG Garden Live in the Moment

I have to say thanks, too. Dr. D is really a hero in all this. He has taken on what no other doctor in the US was willing to do and has taken a lot of heat for it it seems. I wish him the best for the holidays and the recognition he deserves for all his efforts helping MS patients. May his clinical trial help to prove out the CCSVI model and give relief to many MS sufferers. Keep up the good work!
Andrew

breakthroughs would never happen it doctors were not willing to take risks....well done Dr Dake.

I emailed Dr Zamboni a couple of days ago with a personal thank you and actually got a response from him last night saying he appreciated the kind words.

They may not read them all but I encourage sending letters of support to the doctors pioneering these breakthroughs, they get a hard time from a lot of people and I'm sure it means a lot to hear from their supporters as well.

I didn't want to say too much in my other post about everything Dr. Dake mentioned because he kept saying "I probably shouldn't be telling you this....." BUT, I got the sense that he is taking a serious beating right now from a lot of people, especially the neurologists at Stanford. It was almost at the breaking point.

I'm in academia and my husband just said -- "Do you get the sense that this is a lot like academia, where people bad mouth each other and back stab to try to get ahead?" I said yes, in some ways, but here it's not just egos involved but people's lives and health. So Dr. Dake should be commended for continuing on with this!