I had the follow up MRIs last night and my consult with Dr. Dake today.
He is very happy with my results and I am off the Coumadin!! Yippee!!
He showed me my MRIs and the Azygos (sp- I know) was a huge difference.
My upper stent is where it should be and all is good.
So, I am very happy and there are no limitations on my activities.
We had time to kill so I showed my husband parts of the campus he had not seen before, the Hoover Institue, etc. THIS IS ALOT OF WALKING and the last time I was there I was pushed in a wheelchair by friends.
NOT THIS TIME!! I walked all over that darn place!! Found the bookstore a few buildings over, etc. etc.
Every day has something new for me. Honest truth.
Alot of if is just getting out of this old mindset of not even thinking TO DO IT. Does that make sense?? I mean I have put so many ideas out of my head or reach in the last 10 years, that now I must remember what USED to be the norm for me. Sorry if disjointed.
ALSO, I saw Alex and spoke with her at length. She is VERY busy getting the 'study' together and I met a guy, sorry I forget his name, who is part of her Study Team to keep everything organized.
She is such a perfectionist and gets so many emails and she wants so much to make sure EVERYONE gets the opportunities that some of us have already had.
Trust me, Dr. Dake and Alex (and I know many others who I cannot name) are THRILLED to be involved in the new opportunities that CCSVI could and do hold for us.
I know from what I saw today that this is not going away and they are excited for all reasearch and results. They are just as excited to be learning about it as we are to be helped by it.
So those of you who have been cancelled or are further away, please feel optimistic in what I learned today. Dr. Dake is trying to learn all about this just as we are. He knows this is all new and we Newbies are the Pioneers. and he appreciates everything he has learned from ALL of us.
Sorry so long. I want to express the real optimism I observed from Dr. Dake.
He did make a point of discussing the Pharma and how he sees other big things coming down the Pharma 'pike' shortly, also, and that none of us MSers should close our minds to those avenues, either.
It takes a Village, I guess and CCSVI can be a big help.
I hope this makes some sense. I feel intimidated to write here as you all seem so good at it. Sincerely, Rose