prof8 wrote:I forgot to add that you can still stay on all of your MS drugs while in the clinical trial because it's not a trial for MS per se. It's a vascular trial to see what happens if you fix stenosis using stents in the veins.
It seems weird to see people congratulating me for having blocked veins! I think a part of me was hoping nothing was really there only because the idea of blood thinners, surgery and having foreign objects in my body scares me. Actually I didn't think I would be as clogged as I was! But I guess it's good I know what's there and hopefully I really will get in the trial. I told him as I left to sign me right up!
Thanks, I was going to ask you about the meds... I'm praying to get in the study AND for blocked veins -
Seriously though, I'm at about a 6 EDSS so, just please trust me when I tell you don't want to go there - avoid it at all cost, it's really awful... very difficult to explain, too...
I realize this will be a scary thing to do... and I'm sure it'll be difficult to go through but hang in there... I'll be pulling for you !!!
I got some really bad advice when I was first DX.. I unfortunately went to a local MS Society chapter meeting (still fresh with denile and with very minimal and visable symptoms).. seeing all the folks there so freaking disabled nearly gave me a heart attack.. I think I still have nightmares about it to this day..
Anyway, hope to see you in SF !!!!!
Oh, another question... Did Dr. Dake happen to say how many in the study?
THX again for sharing, I really appreciate it..