Bravo MS Society of Canada-I Think?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Bravo MS Society of Canada-I Think?

Postby bohemianbill » Wed Dec 09, 2009 7:04 pm

Click onto the following link, this is an old thread were I explained my position in an email to the Canadian MS Society. They refered me to their web site for all announcements regarding CCSVI.

http://www.thisisms.com/ftopict-9152.html

I was very happy until I saw the dollar amount being allocated to this research. Now i am no scientist but what kind of Study will 100,000 Can
per year for a total of two years buy CCSVI.

Does anybody have any experience with research grants, Should I be happy or upset. I was expecting 5 times that amount at least. Am i missing something here.

http://mssociety.ca/en/research/researc ... ms_rfa.htm
User avatar
bohemianbill
Family Member
 
Posts: 81
Joined: Fri Nov 27, 2009 3:00 pm

Advertisement

Postby cah » Wed Dec 09, 2009 9:13 pm

That's about 1 Dollar in two years for every canadian PwMS, isn't it?

Or about 2,5 surgeries at Stanford or 40 in Poland.


What do they expect can be researched with this little money?
"There is only one good, knowledge, and one evil, ignorance." Socrates
User avatar
cah
Family Elder
 
Posts: 336
Joined: Tue Oct 27, 2009 3:00 pm
Location: Germany

Postby MrSuccess » Wed Dec 09, 2009 9:46 pm

From where this was 10 months ago ....this is great news

It's a start. When the researchers are named ...would it not be a good idea to directly donate some CCSVI - MS dollars ?

Just an idea.

I am pleased with the news.




Mr. Success
User avatar
MrSuccess
Family Elder
 
Posts: 891
Joined: Fri Sep 18, 2009 2:00 pm

Postby bohemianbill » Wed Dec 09, 2009 9:52 pm

cah,

I have a gut feeling that when grants are issued they form part of the funding. Another words the Society is a piece of the funding pie. I am sure researchers receive funding for the same research from multiple sources. Potential stakeholders.

My question is what or who would be an additional source of funding for CCSVI. Who besides the Society/Us has a reason to prove out Zamboni's research?

100,000 C will get you a cup of coffee and a couple janitors to wipe up the mess when you spill it. The Society needs to rethink there parameters, they will be the Single Source of funding maybe for the first time. What body of qualified researchers would even submit a bid?

I had stated previously. That after CTV W5 aired "The Liberation Treatment" the Society was peppered with "What are you going to do about CCSVI" I and i am sure others in no uncertain terms told the Society to get involved and support CCSVI research or risk a backlash from the very people it is mandated to support.

The Monday following the Society took the "we will conduct a competition"a 360 degree reversal from the Friday before.
We will invite responsible parties to submit bids to conduct CCSVI research & IF the submissions pass mustard with the medical body that does the review, We/Society will write the cheque. My fear, at the time was, damage control to shut down the growing backlash.

Now after reading the parameters of this bidding process and the likely Single Source funds available to conduct them, anybody else sharing my
skeptisism.

BB
Last edited by bohemianbill on Thu Dec 10, 2009 5:52 am, edited 1 time in total.
User avatar
bohemianbill
Family Member
 
Posts: 81
Joined: Fri Nov 27, 2009 3:00 pm

Postby MrSuccess » Wed Dec 09, 2009 10:01 pm

BB - I think the research funding has doppler testing in mind ...not stent or angio work . And maybe a MRV or two .. :wink:

I look at it this way .... 100 large out of the drug empire .


It's all good.






Mr. Success
User avatar
MrSuccess
Family Elder
 
Posts: 891
Joined: Fri Sep 18, 2009 2:00 pm

Postby bohemianbill » Wed Dec 09, 2009 10:22 pm

mr success, my fear is come june 14, 2010. 6 months from now we are no further ahead.

BB
User avatar
bohemianbill
Family Member
 
Posts: 81
Joined: Fri Nov 27, 2009 3:00 pm

Postby MrSuccess » Wed Dec 09, 2009 10:38 pm

Bill - I'm not following ....why the date ?

I'm remaining positive.

Dr. Zamboni's research has resulted in others. Stanford , Buffalo , Poland , and who knows where.

These in turn will lead to more .

How can it not ?



Mr. Success
User avatar
MrSuccess
Family Elder
 
Posts: 891
Joined: Fri Sep 18, 2009 2:00 pm

Postby bohemianbill » Thu Dec 10, 2009 5:45 am

Mr Success this is the time line outlined within the mssociety web site
see link below. In reading this June 14, 2010

Announcement of Funding Decisions, Following Approval by the MS Society’s Board of Directors

as it reads the date in which we will be advised who will receive the research grant. I will assume if there are no bidders we would know by Jan.6, 2010. Yet even than final approval is not until june 14. Leaving the possibility that even if a bid/s are submitted they may not qualify.

One last note the society was very specific about the amount specific to CCSVI research competition. Why the distinction Maximum, when in fact within there own guidlines there are no MAXIMUMS?

Up to $100,000 per year
" Maximum" Funding Amount Per Grant

Yet when your refer to there Grant application guidlines-see link below

<shortened url>

Item #17 FAQ

DO OPERATING GRANTS HAVE A MAXIMUM BUDGET/TIME PERIOD THAT CAN BE APPLIED FOR?

No, there is no maximum budget. However, the reveiw committee generally approves a grant for $100,000 CDN per year. New grants are usually funded for a maximum of two years; renewals are considered for three years.

NO, there is No Maximum Budget, yet it is being applied to this CCSVI research Competition?

Since there are no best practise protocols to review regarding CCSVI Research would it not be resonable to forgo the Grant amounts (within the ccsvi competition guidlines) and qualify it with a "to be determined" after all bids have been reviewed.

Would the limit of 100,000 not pre conclude the quality of research therefor limit the scope.

IMHO

BB

TIMELINES
December 9, 2009
Launch of Request for Research Operating Grants

January 6, 2010
Letter of Intent Due

January 12, 2010
Invitation to Submit Full Application

February 9, 2010
Full Applications Due

June 14, 2010
Announcement of Funding Decisions, Following Approval by the MS Society’s Board of Directors

July 1, 2010
Anticipated Start Date of Funding

Up to 2 years
Duration of Research Operating Grant

Up to $100,000 per year
Maximum Funding Amount Per Grant

http://mssociety.ca/en/research/researc ... ms_rfa.htm
User avatar
bohemianbill
Family Member
 
Posts: 81
Joined: Fri Nov 27, 2009 3:00 pm

Email to Society regarding my concerns, will update

Postby bohemianbill » Thu Dec 10, 2009 6:39 am

To the TIMS board i have forwarded an email to the Canadian MS Society re my concerns, if you have any or share mine re this thread post your comments . I assure you the Society will read them

BB

-keep the heat to the feet-




From: Bill Date: 10/12/2009 9:31:49 AM
To: msgrants@mssociety.ca
Cc: info@mssociety.ca; msessex@bellnet.ca
Subject: CCSVI Research Competition

Karen Lee, Ph.D.
Assistant Vice-President, Research
Research and Programs Department
Multiple Sclerosis Society of Canada


MS. LEE

As the caregiver of over 20 years to my dear wife Laurie (CPMS) my excitement over Dr Zambonis research cannot be understated. Like many others I am very excited about the Societies position regarding research of CCSVI.

However i do have some concerns, could you please review the following thread found on the TIMS website, since I am a 2 finger typer it will save me a lot of time. (thanking you in advance) the thread and my personal posts under (bohemianbill) reflect my thoughts. I have never been involved in a grant process, are my concerns realistic, if in fact the Society is the Single Source of funding (as i suspect) should the grant guidlines not be reviewed? As i suggest should the grant of a maximum of 100,000 not be suspended until you receive the bids (to be determined). Will it not by its definition limit the scope therefor the quality of this most important research?

Thankyou
Bill

http://www.thisisms.com/ftopict-9231.html

Announcement of Funding Decisions, Following Approval by the MS Society’s Board of Directors

as it reads the date in which we will be advised who will receive the research grant. I will assume if there are no bidders we would know by Jan.6, 2010. Yet even than final approval is not until June 14. Leaving the possibility that even if a bid/s are submitted they may not qualify.

One last note the society was very specific about the amount specific to CCSVI research competition. Why the distinction Maximum, when in fact within there own guidlines there are no MAXIMUMS?

Up to $100,000 per year
" Maximum" Funding Amount Per Grant

Yet when your refer to there Grant application guidlines-see link below

<shortened url>

Item #17 FAQ

DO OPERATING GRANTS HAVE A MAXIMUM BUDGET/TIME PERIOD THAT CAN BE APPLIED FOR?

" No, there is no maximum budget. However, the reveiw committee generally approves a grant for $100,000 CDN per year. New grants are usually funded for a maximum of two years; renewals are considered for three years. "

NO, there is No Maximum Budget, yet it is being applied to this CCSVI research Competition?

Since there are no best practise protocols to review regarding CCSVI Research would it not be resonable to forgo the Grant amounts (within the ccsvi competition guidlines) and qualify it with a "to be determined" after all bids have been reviewed.

Would the limit of 100,000 not pre conclude the quality of research therefor limit the scope.

IMHO

BB

TIMELINES
December 9, 2009
Launch of Request for Research Operating Grants

January 6, 2010
Letter of Intent Due

January 12, 2010
Invitation to Submit Full Application

February 9, 2010
Full Applications Due

June 14, 2010
Announcement of Funding Decisions, Following Approval by the MS Society’s Board of Directors

July 1, 2010
Anticipated Start Date of Funding

Up to 2 years
Duration of Research Operating Grant

Up to $100,000 per year
Maximum Funding Amount Per Grant

http://mssociety.ca/en/research/researc ... ms_rfa.htm
User avatar
bohemianbill
Family Member
 
Posts: 81
Joined: Fri Nov 27, 2009 3:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service