My neuro's response to CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
User avatar
ozarkcanoer
Family Elder
Posts: 1273
Joined: Thu Oct 15, 2009 2:00 pm
Location: St. Louis, Missouri
Contact:

My neuro's response to CCSVI

Post by ozarkcanoer »

:D I have been emailing my neuro information about CCSVI for a couple of months now. We talked briefly about CCSVI at my last appointment. This morning he actually replied to one of my emails !!! Here is his response to me :

"Hi.  I admire your conviction and interest.  I have added CCSVI to my blog.   Hopefully new research will give us new insight into whether this theory is valid and whether treatment might work."

My neuro's website and blog :

http://mslivingwell.org/


ozarkcanoer
User avatar
Ruthless67
Family Elder
Posts: 422
Joined: Tue Oct 27, 2009 3:00 pm
Location: Montana, USA
Contact:

Post by Ruthless67 »

Way to go, that alone should garner some interest from his other patients and folks who log onto his web site.
Lora
User avatar
CureIous
Family Elder
Posts: 1260
Joined: Tue Jul 14, 2009 2:00 pm
Location: Riverside, CA
Contact:

Post by CureIous »

Hey now good work! Whoo hoo!
Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
jess
Getting to Know You...
Posts: 12
Joined: Wed Dec 09, 2009 3:00 pm

Post by jess »

i was just diagnosed pls tell me this isent a joke about ccsvi im changing to dr ann cross at wash u shes supposto be the best in atleast this reagion has any one heard of dr ann cross i feel so lucky to be refered to her by a high level chief med. examner out of st louis this is the first time i ever sent a e mail i hope it works here goes thankyou everyone jeff
User avatar
ozarkcanoer
Family Elder
Posts: 1273
Joined: Thu Oct 15, 2009 2:00 pm
Location: St. Louis, Missouri
Contact:

Post by ozarkcanoer »

jess... From everything that I have heard, Dr Ann Cross is an excellent doctor. But I do not know her views on CCSVI. I hope this helps.

ozarkcanoer
User avatar
jess
Getting to Know You...
Posts: 12
Joined: Wed Dec 09, 2009 3:00 pm

Post by jess »

thankyou ozark 4 your reply now everyone pls say a prayer
User avatar
escape_goat
Newbie
Posts: 9
Joined: Tue Oct 13, 2009 2:00 pm

Post by escape_goat »

Jess,

When I moved to STL from out of state, my neuro recommended Dr. Cross. At that time, (and this was *years* ago) she wasn't accepting new patients... I saw another Dr. in her practice, and I didn't care for him. He's probably a great doctor, just personality-wise.

Dr. Singer is highly regarded as well at MoBap. I see Dr. Barbara Green at Saint John's and I like her very much. I don't know her attitude on CCSVI, my appointment isn't until the middle of next year.

I like Dr. Singer's website, I think that's great that he has one and has something to say about new developments ... I've been super happy w/ Dr. Green but I'd still almost like to check Singer out. Hmmmmm...

Thank you, ozark for all your hard work! :)
User avatar
jess
Getting to Know You...
Posts: 12
Joined: Wed Dec 09, 2009 3:00 pm

Post by jess »

escape thankyou 4 sharing that :) :)
User avatar
zaksin
Newbie
Posts: 4
Joined: Thu Dec 10, 2009 3:00 pm

CCSVI

Post by zaksin »

Hi, does anyone know the best way to get tested for this, spoke to my dr, he wants more info, not sure where to start to be honest. Would a doppler ultra sound be the first place to start?. What would i need to ask for, can they do the veins with this or just the atteries. i just want to get a diagnosis first, if there blocked then go from there.[/b]
User avatar
zaksin
Newbie
Posts: 4
Joined: Thu Dec 10, 2009 3:00 pm

Post by zaksin »

reply i received from Clinacal Vascular specialist

Dear Sir

Thank you for your enquiry to the SVT regarding specialist ultrasound scans.

Carotid Doppler ultrasound scans of the ARTERIES in the neck are widely available in the UK at NHS and private hospitals. Venous reflux of intra and extra cranial VEINS are less widely available in the UK and therefore I cannot advise you as to where this could be performed. Your best action would be to contact an MS specialist doctor based in the UK, who may be able to advise you where you can have this specialist non routine Doppler ultrasound test of the VEINS carried out.


So i ask myself, how do i get tested, diagnosed, i seem to be banging my heard against a brick wall
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”