CCSVI and ARSEP (France)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI and ARSEP (France)

Postby jean-la-grenouille » Thu Dec 10, 2009 2:19 pm

The french MS association ARSEP released today an article on CCSVI (we were looking forward such a statement). This is important because french scientists now pay attention to CCSVI.

Very good news for us in France.

Good evening,

John-the-frog[/code]
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What did they say?

Postby fiddler » Thu Dec 10, 2009 2:27 pm

Jean, what did ARSEP say about CCSVIandthe liberation treatment?
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Postby Algis » Thu Dec 10, 2009 8:47 pm

The article is there:

http://www.arsep.org/?mod=actualite&ID=173&lang=fr

But it mostly said that all this is preliminary and need testing and blah blah
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Postby Rokkit » Thu Dec 10, 2009 9:04 pm

Algis wrote:The article is there:

http://www.arsep.org/?mod=actualite&ID=173&lang=fr

But it mostly said that all this is preliminary and need testing and blah blah


Well it is preliminary and needs testing, that's true. At least this is much better than the German MS society discarding Zamboni out-of-hand.
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Postby bestadmom » Thu Dec 10, 2009 9:05 pm

I translated it in google and it is more positive and open than most MS societies.
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ARSEP

Postby fiddler » Thu Dec 10, 2009 9:17 pm

Yes, I read it in French and I would say it was pretty balanced... but is that all they said? Unless MSers in France aren't well connected to the international MS networks, they must be clamoring for testing and treatment. By the way, perhaps I just haven't seen the right thread, but what is the reaction like in Italy? Has Zamboni been canonized yet? :-)
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CCSVI ARSEP FRANCE

Postby jean-la-grenouille » Sat Dec 12, 2009 4:04 pm

Hi !

Following the ARSEP publication, I wrote an e-mail to a scientist who works for ARSEP.
I asked what was the Arsep plannig to do (specific studies, further research, clinical trials...)

The answer was in brief, that everything as to be controlled, with a call for proposals, a talk with three world experts, an argumented debate, a decision from the ARSEP scientific comity.

Eventhough we feel better since this article has been published, we find Arsep isn't as excited as we (patients) are.

Dr Lubetsky (Pitié-Salpêtrière-Paris) leads the ARSEP scientific board. Her position is quite critical regardingCCSVI.

French patients are active and excited, we have a big hope that MS research is at a turning point.
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Postby whyRwehere » Sun Dec 13, 2009 1:09 am

Oh, Jean, that is so French: an "argumented" debate. Well, it's got the ball rolling anyhow. Could you keep us posted on developments?
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