This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Tue May 21, 2013 2:26 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 8 posts ] 
Author Message
PostPosted: Thu Dec 10, 2009 2:25 pm 
Offline
Family Elder
User avatar

Joined: Wed Dec 02, 2009 4:00 pm
Posts: 218
Location: Hungary
My first sign of MS was a vascular issue…

In 2000 I had a stroke-like attack: I fully bended down and when i took an upright position again 4-5 seconds later my left arm started to crooking on its own and my left leg started to stretching out. I was felling to the ground and started to shout for help. I felt that my speaking was also touched, and also my eyes were looking squinted.
these symptoms were present for cca 30 seconds and started to diminish and then vanished fully. My mind was clear all the time
I went to the hospital and was examined for everything: on brain MRI there was a really small spot (cca 4-5 mm diameter) which was the only irregularity found.
I was very fat at that time, smoking, no sport, no healthy food. and a little-bit high blood pressure was present. they said it was a mini-stroke or TIA. But, hey i was just 25 years old!
My MS came into the picture just 4-5 moths later: pins and needles in my hand, and burning sensations: a second MRI a year later found classical MS lesions, and i had the diagnosis: MS. I asked about the stroke-like episode, but they said its another story, its independent from my MS. but i couldn't believe it for years, was always asking my neuros about this stroke like story: no answer…. until Dr. Zamboni came :)

Learning about this CCSVI theory it looks like there could have been some kind of connection… because my first sign of MS was a vascular issue. strange, huh?

does it make sense? or a stroke mainly is about arteries and not about venous vessels?

Anyone with stroke-like episodes here?

thanks for any remark
Alex

(RRMS diagnosed in 2000, EDSS 3, feeling quite good, just minor symptoms)


PS: successfully arranged my MRV in Hungary, i expect it within a few days or weeks! and continuing the missionary work to spread the word within the universities and vascular doctors here …


Top
 Profile  
 
 Post subject:
PostPosted: Thu Dec 10, 2009 2:39 pm 
Offline
Family Elder

Joined: Wed May 03, 2006 3:00 pm
Posts: 6063
.


Last edited by Lyon on Tue Nov 22, 2011 3:29 pm, edited 1 time in total.

Top
 Profile  
 
 Post subject: Some similarities
PostPosted: Thu Dec 10, 2009 5:20 pm 
Offline
Family Elder
User avatar

Joined: Wed Dec 02, 2009 4:00 pm
Posts: 398
Location: Fredericton, Canada
Alex, your first symptoms sound a little like mine. This occurred when I was on sabbatical in Spain. The first time it happened, I fell to my knees when getting out of the shower. Next time I noticed something was when it felt I had a mini seizure. About the 3rd time it happened, I realized that it was just on the right half of my body that this was happening. It continued a few times a day for three weeks, then went away. I had no more symptoms until the next fall, when my walking started to get bad. 18 months later I was finally diagnosed with MS.

I have many MS symptoms, but interestingly it is now my left side that has become much weaker than my right side.

_________________
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com


Top
 Profile  
 
 Post subject:
PostPosted: Thu Dec 10, 2009 7:38 pm 
Offline
Family Elder
User avatar

Joined: Mon Apr 20, 2009 3:00 pm
Posts: 326
My first episode started with what, in retrospect, was almost certainly a mini-stroke, which left a good size lesion on my pons (brain stem). I got out of a hot shower and fell to the ground suddenly, and my one leg jumped around like a seizure a bit while I watched. Afterward I could not understand my GF when she tried talking to me, etc ... this was not long before my MS diagnosis, maybe a year or so.


Top
 Profile  
 
 Post subject:
PostPosted: Fri Dec 11, 2009 5:50 am 
Offline
Family Elder
User avatar

Joined: Thu Dec 10, 2009 4:00 pm
Posts: 156
Location: London, UK
Same thing happened to me. One side became very weak and I couldn't control it very well. Went to the hospital and they said that they thought I may have had a mini-stroke. Much later, maybe 2 years later, I was diagnosed with MS!


Top
 Profile  
 
 Post subject:
PostPosted: Fri Dec 11, 2009 5:54 am 
Offline
Family Elder
User avatar

Joined: Thu Dec 10, 2009 4:00 pm
Posts: 156
Location: London, UK
Same thing happened to me. One side became very weak and I couldn't control it very well. Went to the hospital and they said that they thought I may have had a mini-stroke. Much later, maybe 2 years later, I was diagnosed with MS!


Top
 Profile  
 
 Post subject:
PostPosted: Fri Dec 11, 2009 7:41 am 
Offline
Family Elder
User avatar

Joined: Wed Dec 02, 2009 4:00 pm
Posts: 218
Location: Hungary
the important thing is that mine symptoms came right after a bending down! which clearly shows that there was a vascular origin



colapesce wrote:
Same thing happened to me. One side became very weak and I couldn't control it very well. Went to the hospital and they said that they thought I may have had a mini-stroke. Much later, maybe 2 years later, I was diagnosed with MS!


Top
 Profile  
 
 Post subject:
PostPosted: Wed Dec 16, 2009 11:23 am 
Offline
Family Elder
User avatar

Joined: Sat Dec 12, 2009 4:00 pm
Posts: 332
Location: Rosetown, Canada
I was rushed to a hospital in a near-by city being sent to see a neurologist with stroke-like symptoms. The whole right side of my body shut down. I couldn't feel anything including swallowing. We now know that it IS vascular. So happy.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 8 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. CCSVI, cause or symptom?

[ Go to pageGo to page: 1 ... 7, 8, 9 ]

EJC

128

5164

Tue Apr 10, 2012 12:02 pm

EJC View the latest post

There are no new unread posts for this topic. Not so new symptom /information please?

Mechanicallyinclined

9

1893

Sat Jan 02, 2010 7:36 pm

thornyrose76 View the latest post

There are no new unread posts for this topic. Symptom Improvements

npost999

5

1194

Mon Nov 15, 2010 2:02 pm

thornyrose76 View the latest post

There are no new unread posts for this topic. Is CCSVI a condition/symptom

fee001

5

873

Wed Aug 10, 2011 2:41 am

civickiller View the latest post

There are no new unread posts for this topic. Strange new symptom, sound blood flow related to you?

Johnnymac

2

1087

Mon Jan 11, 2010 1:54 pm

AndrewKFletcher View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: