Hey--I've been over in acupuncture land (my other post) the past couple of days and I didn't even know about all this action going on over here in Duke land until I read my private message from Rhonda a minute ago. All I can say is YEAH!! (my email wasn't alerting me of responses to this post).
Rhonda--I had copied one of your posts from the tracking site and forwarded it to Dr. M-W, hoping he would get in touch with you--but you got in touch with him which is great. I thought maybe I was overdoing it, but I think not.
This is all very good news, especially since I saw my GP today, presented her with the CCSVI info., and ask if she'd get me tested. She said no. Not because she wasn't supportive or interested but she felt unable to validate a claim--fraudulent is the term I believe she used.
My next plan of action was to go to the UNC emergency room and yell: "Help, help, I'm having a stroke, I'm having vague neurological symptoms. I'm going numb and it has nothing to do with my MS. Please someone check the oxygen poor blood flowing out of my internal jugular vein and my azygous vein. It feels like they're clogged. Help, please anyone, an interventional radiologist with a dopple MRV or a vascular surgeon with a stent handy, anyone, help, HELP................."
But maybe I won't have to do that after all.
We are lucky to have each other. Judi
RRMS Diagnosed 1997
My house burned down, now I can see the moon.