MRV & Doppler Ultrasound in Canada?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby jewelia » Mon Dec 14, 2009 6:47 pm

Much appreciated Fiddler!
User avatar
jewelia
Getting to Know You...
 
Posts: 23
Joined: Sat Nov 21, 2009 3:00 pm

Advertisement

Postby jewelia » Mon Dec 14, 2009 7:04 pm

Dear Simon,

The same woman who has arranged the testing at False Creek Surgical Centre in Vancouver is also setting this up in Gatineau. You can call her toll free - her name is Yaseem Sayeed. She can expain it to you more and answer any questions you may have.

Tel: 1-877-871-4315( Toll Free) , 604-575-4316
Fax: 778-574-7253
Email: ysayeed@surgicaltourism.ca
Web: www.surgicaltourism.ca

best regards,
Julia
User avatar
jewelia
Getting to Know You...
 
Posts: 23
Joined: Sat Nov 21, 2009 3:00 pm

St Mary's in Montreal

Postby fiddler » Tue Dec 15, 2009 7:42 am

Folks, there is no CCSVI. Must have been a misunderstanding on someone's part (wishful thinking?). Anyway, here is their reply:

Unfortunately, there is no formal CCSVI study currently being conducted at St. Mary’s.
What you heard about was in fact a one on one exchange between a patient and a dedicated family physician with an interest in the topic (from what I have been able to gather).

Several recommendations:
1) Speak to your own family physicians to see whether he/she is familiar with the work currently being conducted in the field. Perhaps he/she can help you book an appointment for a scan, and can help interpret results - or can link you to someone who can.

2) I believe there is currently a formal study being conducted at McMaster (http://www.ctv.ca/servlet/ArticleNews/s ... 1/20091121) - you may try getting in touch with someone there. I unfortunately don’t have any additional information.

3) You may try to contact the vascular lab (for imaging/scans of the vascular system) at St. Mary’s hospital (with Michael Baranyai) – but I am afraid they may not have much more information for you. 514 345 3511 ext 3682.

Wishing you both the best,

--
Manon de Raad
Project Coordinator
Department of Clinical Epidemiology & Community Studies
St. Mary's Hospital Center
Tel.: (514) 345-3511 Ext 3074
www.smhc.qc.ca/Epidemiology/index.html


Guess us easterners will have to look elsewhere.

...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
User avatar
fiddler
Family Elder
 
Posts: 398
Joined: Wed Dec 02, 2009 3:00 pm
Location: Fredericton, Canada

Michael Baranyai

Postby fiddler » Tue Dec 15, 2009 8:00 am

OK, being the dogged person I am (stubborn?), I decided to make one more call, to Michael Baranyai. Very luckily (he said), I caught him at his desk. In fact, his lab IS doing the doppler and MRA (angiography, which he says is the same as venography) and though he has lots of experience with imagery (since 1986), he is on a steep learning curve with respect to CCSVI, doesn't assume that he has the expertise of Haacke, Zamboni, Dake or Simka, but is willing to do the assessment for me sometime after Christmas. I need a referral from my doctor here in Fredericton.

By the way, I asked if he wanted me to remove his phone number from my posting, but he said it was OK because his phone number is already out there. Won't put out his pager number, though. :)
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
User avatar
fiddler
Family Elder
 
Posts: 398
Joined: Wed Dec 02, 2009 3:00 pm
Location: Fredericton, Canada

Postby C3Glo » Tue Dec 15, 2009 8:10 am

Fiddler ... This is good news! So glad you were stubborn & made the call!!!!
C3Glo
Family Member
 
Posts: 37
Joined: Fri Dec 04, 2009 3:00 pm
Location: Vancouver, BC Canada

Postby Billmeik » Tue Dec 15, 2009 8:41 am

if false creek did 20 scans last week thats 40 grand. Someone must know someone who got results with a blockage? If the jugs arent clogged then the a vein in the back?
User avatar
Billmeik
Family Elder
 
Posts: 694
Joined: Fri Nov 27, 2009 3:00 pm

Postby C3Glo » Tue Dec 15, 2009 8:51 am

Billmeik wrote:if false creek did 20 scans last week thats 40 grand. Someone must know someone who got results with a blockage? If the jugs arent clogged then the a vein in the back?


I posted something on the UBC CCSVI Facebook page to see who else has gone to FCSC ... The only person I have been in contact with that has was Dawna.

I am interested to hear from others who have gone too!
C3Glo
Family Member
 
Posts: 37
Joined: Fri Dec 04, 2009 3:00 pm
Location: Vancouver, BC Canada

Postby Billmeik » Tue Dec 15, 2009 9:23 am

attenuated
adj. made thin; tapered; reduced; weakened


so a mild attenuation is a milld stenosis kinda.

The first studies that tried to replicate zamboni got 10%.

I would say we're paying for those guys to solve some really hard anatomy problems..
User avatar
Billmeik
Family Elder
 
Posts: 694
Joined: Fri Nov 27, 2009 3:00 pm

Postby C3Glo » Tue Dec 15, 2009 10:42 am

This was just posted on the CCSVI at UBC Facebook page :

"CCSVI at UBC MS Clinic - Information and Support CTV is apparently going to UBC to interview doctors regarding CCSVI today. I don't have confirmation which broadcast to watch, but it involves Avis Favaro, the original W5 reporter who went to Italy. I have my DVR set to record all CTV news broadcasts today!"

One of the ladies on the FB site is going to be a part of the interview & says it will be on the National News.

Check it out:
http://www.facebook.com/#/pages/Victori ... 940?ref=mf
C3Glo
Family Member
 
Posts: 37
Joined: Fri Dec 04, 2009 3:00 pm
Location: Vancouver, BC Canada

Postby C3Glo » Tue Dec 15, 2009 10:44 am

This was was in the Vancouver Sun today regarding the FCSC:

http://www.vancouversun.com/Italian%20r ... story.html
C3Glo
Family Member
 
Posts: 37
Joined: Fri Dec 04, 2009 3:00 pm
Location: Vancouver, BC Canada

Postby C3Glo » Tue Dec 15, 2009 10:49 am

Another post from the CCSVI at UBC Facebook page ... just posted now!

CCSVI at UBC MS Clinic - Information and SupportI just heard from the CTV producer that they may run two stories today on MS – one on the UBC research and one on False Creek doing these scans.

http://www.facebook.com/#/pages/Victori ... 6391808733
C3Glo
Family Member
 
Posts: 37
Joined: Fri Dec 04, 2009 3:00 pm
Location: Vancouver, BC Canada

Postby C3Glo » Tue Dec 15, 2009 11:13 am

Check out CBC radio for their Daily Audio Feature on Zamboni's research ... it looks like this may change daily so I am not sure how to specifically go to the Audio link ...

Dr. Samuel Ludwin, a professor of neuropathology at Queen's University who's been researching Multiple Sclerosis for over 30 years, discusses the new theory and treatment for the disease proposed by Dr. Paolo Zamboni, a professor of medicine at the University of Ferrara in Italy.



http://www.cbc.ca/ontariomorning/
C3Glo
Family Member
 
Posts: 37
Joined: Fri Dec 04, 2009 3:00 pm
Location: Vancouver, BC Canada

Postby C3Glo » Tue Dec 15, 2009 11:18 am

Ok ... one more thing from CBC today ...

http://www.cbc.ca/health/story/2009/12/ ... ffalo.html
C3Glo
Family Member
 
Posts: 37
Joined: Fri Dec 04, 2009 3:00 pm
Location: Vancouver, BC Canada

Postby Billmeik » Tue Dec 15, 2009 11:51 am

what if this noise has allowed msers to be taken for thousands of dollars for pictures that 'may' or may not show the problem?
User avatar
Billmeik
Family Elder
 
Posts: 694
Joined: Fri Nov 27, 2009 3:00 pm

Postby Billmeik » Tue Dec 15, 2009 11:52 am

what if this noise has allowed msers to be taken for thousands of dollars for pictures that 'may' or may not show the problem?
User avatar
Billmeik
Family Elder
 
Posts: 694
Joined: Fri Nov 27, 2009 3:00 pm

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: Robnl


Contact us | Terms of Service