MRV & Doppler Ultrasound in Canada?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Dr Ludwin on CBC

Postby dunkempt » Tue Dec 15, 2009 11:52 am

Yes Dr. Ludwin was very positive! Some quotes (my transcription, not official from the CBC):

His advice to patients: "Get excited, but not over the top... don't stop your regular medicines. But call your local MS Neurologist to see if the diagnosis at least can be set up locally.... (!!)"

On his own reaction: "I am very excited, but cautious."

Here is a longer link which should take your right to the audio file:

http://www.cbc.ca/mrl3/8752/toronto/ond ... 09_TOR.wma

-d
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Postby Johnson » Tue Dec 15, 2009 1:07 pm

Billmeik wrote:what if this noise has allowed msers to be taken for thousands of dollars for pictures that 'may' or may not show the problem?


I don't think that anyone has been taken for anything. People willingly gave money to be scanned.

Until we get some actual reports, let us try to have some positivity.
My name is not really Johnson. MSed up since 1993
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Postby Billmeik » Tue Dec 15, 2009 1:24 pm

there are 2 reports back from false creek. 1 on facebook and another in an article. Both showed no ccsvi. Negative would be thinking this is because zamboni, and the buffalo and stanford replications were cooked. No. I think this is because false creek is at least a month away from learning how to do this test well.
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Postby Billmeik » Tue Dec 15, 2009 1:26 pm

there are 2 reports back from false creek. 1 on facebook and another in an article. Both showed no ccsvi. Negative would be thinking this is because zamboni, and the buffalo and stanford replications were cooked. No. I think this is because false creek is at least a month away from learning how to do this test well.
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Postby Johnson » Tue Dec 15, 2009 3:13 pm

Billmeik wrote:there are 2 reports back from false creek. 1 on facebook and another in an article. Both showed no ccsvi. Negative would be thinking this is because zamboni, and the buffalo and stanford replications were cooked. No. I think this is because false creek is at least a month away from learning how to do this test well.


Agreed, Bill. I was not implying that you were being negative regarding Zamboni et al , I just don't think anyone was "taken". False Creek Surgical has expressed that they do not just want to take the money of MSers, and has offered a caveat.

Being that they are not doing trans-cranial Doppler there, I would think the the ultra-sound scans would be a waste of money, but MRV ought to show what is there, or not. It might be that it takes a while for them to get up to speed with the imaging techniques, and even longer for accurate interpretation of same.

The one report that I have seen was not very succinct, nor explicit, but did show "attenuation", for what that is worth.

We have to start somewhere...
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Postby Vhoenecke » Tue Dec 15, 2009 5:15 pm

Don't forget to claim all procedures you get done on Income Tax. Also include lodging and travel.
I have a call in at False Creek, hope they know what they are doing.
Take care all! :roll:
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Postby C3Glo » Tue Dec 15, 2009 6:39 pm

Here was the CTV News report which aired tonight regarding UBC research starting in the new year!

http://watch.ctv.ca/news/clip247004#clip247004
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Postby ozarkcanoer » Tue Dec 15, 2009 6:46 pm

Thanks for posting a link to this study. There is more hope !
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Postby SandyK » Tue Dec 15, 2009 7:07 pm

C3Glo, thank you! That was encouraging. It was great to see people actually saying the words out loud.
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Postby C3Glo » Tue Dec 15, 2009 7:17 pm

There is supposed to be more extensive coverage later tonight on the National ... I'll post when it's up!
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Postby C3Glo » Tue Dec 15, 2009 7:26 pm

A write up about FCSC today ... here is the link!

http://www.canada.com/health/Private%20 ... story.html
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Postby C3Glo » Tue Dec 15, 2009 7:37 pm

Here is something from the Globe & Mail today on UBC Research!

http://www.theglobeandmail.com/news/nat ... le1401820/
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Postby Billmeik » Tue Dec 15, 2009 8:03 pm

what if the ubc guys dont send someone to get trained in italy first ?

Trobelsee is my neuro. He's a good guy, but he's pretty old school in his thinking. Would this be a replication to prove ccsvi and ms are true or a sloppy replication to prove it is untrue?
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Postby C3Glo » Tue Dec 15, 2009 10:40 pm

OK ... here is the CTV National News Broadcast That has just aired tonight!!!! :D ...

http://watch.ctv.ca/news/ctv-national-news/#clip247020
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False Creek email

Postby SandyK » Tue Dec 15, 2009 11:26 pm

This arrived in my email...

Hi Everyone:



Testing is underway, two from our group already being tested this week. Anyone interested



Please complete the attached forms and fax them to the Advanced Diagnostic Center at False Creek.



Please mark it as follows:



F.A.O: Tara Muncey

Re: MS/CCSVI Testing

Ref: Yasmeen Sayeed/STC



Please fax the complete registration package. If you do not have a physician to fill the requisitions, please let me know and I will arrange a physician appointment.



The current available dates are: Appointments are filling up fast, so it will be on a first come first served basis.



January 11, 12, 20, 21, 27,28,

February 10,11



Best regards

Yasmeen



Yasmeen Sayeed. B.Sc, DHM, MBA

President & CEO

Surgical Tourism Canada Inc.

17425-64th avenue

Surrey. BC. V3S1Y8

Tel: 1-877-871-4315( Toll Free) , 604-575-4316

Fax: 778-574-7253

Email: ysayeed@surgicaltourism.ca

Web: www.surgicaltourism.ca
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