CCSVI on Daily Kos

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI on Daily Kos

Postby zap » Fri Dec 11, 2009 10:00 am

Pardon me if this was posted elsewhere, I may have missed it:
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Postby Ruthless67 » Fri Dec 11, 2009 10:23 am


I enjoyed reading his post very much, thanks for the link.

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Postby CureIous » Fri Dec 11, 2009 10:42 am

So it begins...
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video:, Virtually symptom free since, no relap
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Postby MS_mama » Fri Dec 11, 2009 1:22 pm

this bit cracked me up--so true:

In the US, where the drug makers are treated more like overlords, the MS Society was more reluctant. In fact, there has been dramaticaly less press about CCSVI in the US than in Canada. Imagine that. But, they finally came around and are at least paying lip service to funding research. I'm not convinced by this statement that they actually will fund it, in fact the impression I get is that they're humoring us:
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
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Postby Loobie » Sat Dec 12, 2009 6:36 am

Cheer has this link up on the CCSVI Facebook page. I LOVED this guy's writing. This was a good one, and even though he takes a few jabs (it is the DailyKos after all :lol: ), he pretty much throws a pretty good net around the whole thing. I loved his take. He pretty much sums up, I think, how alot of us feel. Very well done!
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