Ruthless67 wrote:Hi All,
I happened to notice that Stone Phillips' wife at 60 Minutes has MS, so I sent an e-mail to him through CBS with info on CCSVI. Maybe a couple more folks coukd do the same. If he gets enough info from us maybe he'll investigate it? Certainly can't hurt.
Yeah this whole thing just screams for a 60 minutes piece, maybe they can do one on Cheer. Although it's great to get some splash finally, and much needed to "further the cause", considering the number of people wandering around still saying, "yeah but now what do I do" it's going to be tough to encapsulate down into a manageable form, without making it too complex. Hats off to all our Canadian brothers and sisters and ESPECIALLY to False Creek for not waiting for "the official word".
I know my hairdresser's (chop and go lol) coworker has someone with MS, and he sleeps most of the day and doesn't participate much in life. Argh. These are the ones so difficult to reach, totally reclusive, almost unreachable, down and depressed and unable to just "dig in" and figure all this out. It took every firing brain cell in my head and a permanently closed office door just to get the highlights in here and even that was tough. I could do it, but if there was any interruption my brain just "dumped" everything and had to start from wherever it was I think I started. Some kind of frustrating.
So yeah the media stuff helps a lot to raise awareness and get people investigating, no doubt about it. Look at how far the societies have come in such short order, that would NEVER have happened with other therapies so quickly. My thought is all Zamboni and patient testimonials aside, when we get American sources like Buffalo and the upcoming piece on Stanford, then of course they will be beating down the door to get ahead of it. Media here is mostly reactionary and unoriginal. We need another 1,000 Avis's here that's for sure...
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko
, Virtually symptom free since, no relap