Upadate on Me (Catfreak)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Upadate on Me (Catfreak)

Postby catfreak » Sat Dec 12, 2009 7:42 pm

Wow, has this site gone crazy or what!! I can't keep up on the reading material posted everyday!! Awesome, just awesome.

I am doing really good these days. Working 50 plus hours a week and trying to plan all our events for the holidays. Having to do decorating in shifts. Finally got the tree finished tonight.

I put off my next Tysabri treatment for december so I can actually enjoy Christmas and I go back to my Neuro on February 1st and get a treatment that day along with an MRI. Excited to see the results and to see if my neuro is anymore knowledgeable about CCSVI.

I will probably decline any more Tysabri treatments until I see the next MRI in August.

Let's keep getting the word out!!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby bestadmom » Sat Dec 12, 2009 9:14 pm

Hi Cat,

I was wondering how you've been, and figured since you're not posting regularly, you are out and about and busy. You sound great and I'm happy for you. 50 hours a week of work plus life is a lot for anyone and you sound like you're thriving.

Congratulations and keep us updated. I'm curious how you're neuro appt will go too. By the time you have it, if he doesn't know about CCSVI, he's living under a rock.

Michelle
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Postby magoo » Sun Dec 13, 2009 5:24 pm

So glad to hear you are doing so well! Good to see you here. This board has gotten busy. It is so amazing.
Have a wonderful holiday and thanks for checking in :)
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby Needled » Sun Dec 13, 2009 6:14 pm

Cat, So good to hear from you, and it sounds like things are going really well. That's great! I hope you continue to feel better every day. :D
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Postby bibliotekaren » Sun Dec 13, 2009 6:32 pm

Cat,

I don't post that often but have followed your journey and been rooting for you. Holy smokes - 50 hours a week! Am really glad to hear you're doing so well. Look forward to hearing of that continuing in the future!

Take care,
Donna
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Postby catfreak » Sun Dec 13, 2009 6:35 pm

Michelle,

My neuro knows about it, I made sure of that! I think he is a great Dr, he is compassionate, caring and I want to continue to use him. As hard as it would be to change - I am not married to him and if he does not get up to speed with CCSVI or I feel he is letting the drug companies control his action then I will find a Dr I feel believes in CCSVI.

We will see!!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby CRHInv » Mon Dec 14, 2009 9:18 am

There you are! We were looking for you a while ago. I am soooo glad to hear how well you are doing. I would love to hear how your neuro appt goes too! Right now my next appt is scheduled before I go for my 2 mo check up. I am going to try right now to get it moved to just after, we'll see if that can be done... Anyway, have a wonderful holiday and keep in touch!
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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