This Is MS Multiple Sclerosis Community: Knowledge & Support

2009 has been a rollercoaster ride for CCSVI - with ups and downs to rival Cheer's melodic voice.

But what does 2010 offer?..........................Here's my CCSVI Centre predictions for the time capsule.

By the close of 2010, I think there could be the following 5 treatment locations with more to follow in 2011.

1. KATOWICE

I think the Polish team will continue to hone their skills and sort out a few bugs in the system. They are playing a straight bat with their treatment, not taking too many risks and Katowice is a city on the rise which should enable support from the local authorities.

2. SAN FRANCISCO

Dake is a big, brave and enlightened medical personality who should be able to shake off the conservative elements of the Stanford medical establishment, enabling him to come back with renewed vigour and a revamped protocol.

3. FERRARA

Prof Zi is planning to commence in the new year. We don't know all the ins and outs behind the delay, but one possible explanation might simply be appropriate facilities. Someone in Ferrara told me they were building a new hospital which has been taking forever and was expected to open early next year.

4. EAST COAST NORTH AMERICA

The exciting work in Detroit and Buffalo should lead to a center before long - or maybe 2 centers with at least one in the US and another in Canada.

5. SINGAPORE

Singapore is perhaps the leading medical location in the Austral-Asian region with international level hospitals and Western trained doctors. Singapore is central and accessible. It would need someone from Katowice, Ferrara or San Francisco to assist its establishment.

Other possibilities.........

* France - don't underestimate WhyR
* Bangkok - an alternative to Singapore
* China - won't be long
* India - Indian medical is being actively promoted
* South America - not sure
* UK - Scotland has been medically proactive or Belfast
* Australia - Perth is shaping up
* NZ - muse might pull a rabbit
* Netherlands - maybe
* Germany - the Germans don't like to get behind
* Other North America - Texas or Vancouver?

I may be way off the mark. There might only be 1 or 2 facilities by the close of 2010 or there could be 20. But at least 5 would be a reasonable expectation, especially considering the way things have gone this year. Anyone who wants treatment in the short term, shouldn't find it too difficult.

Feel free to add your own thoughts folks - I don't have a crystal ball but I think the future is quite positive.

Phil

That all seems quite sound, Phil.

For Canada, I half-suspect that it will be Montreal, or Vancouver, or both (that would be good). This is going places, no doubt about it.

_________________
My name is not really Johnson. MSed up since 1993

Singapore will not do by initiative. China will; or Taiwan India - Definitively. Forget Bangkok.

I think by the end of 2010, the world of MS will be a completely different terrain (if it all pans out as CCSVI). When 000's of people end up testing positive for CCSVI, treatment will not be able to be denied. The ground zero murmurs are gaining momentum, and groups are starting to connect. (eg Perth with Dr Haake)

I also do not have a crystal ball, and I am not even going to give my magic 8 ball a shake.

Well, rule out the Netherlands for 2010. The VU in Amsterdam is trying to investigate the relation between CCSVI and MS.
But the way they are setting up the investigation is at least a bit confusing (you could use stronger words )

So, if you would want to say anything about the status in Holland: veery carefully the VU is making tiny steps in a development they do not trust right now.

But...things can change....


Next week the first Dutch woman will be treated, Q1 2010 more Dutch MS patients will be treated by Dr. Simka in Poland (me included).

Robert

I am 75% sure there will be treatment in New York City in 2010. A trial is in the works, too.

I am confident there will at least be a study in Buffalo next year.
Also, I'll bet anywhere you see the stem cell clinics you will see this. That would include Panama, Mexico, Puerto Rico, etc. Whether I would trust these...

IT's my understanding from people enrolled in the Buffalo study, it will not be revealed to the patient if they have a stenosis as it's a double blind study. But I don't really understand this, because anyone doing a doppler u/s image of a patient would be able to see this wouldn't they? How could the imaging be done well if the technician can't see what they're doing? So, I don't see how that fits the double blind criteria.

In any case, I'm told when the study results are published, however many months down the line, then the patients will be told about the stenosis.

Please correct me if I'm wrong, as I'd considered going to Buffalo but I don't want to wait a year to find out if I have a stenosis or not.

Poland or Stanford seems like the best bets to me.

selkie

Does anyone know about trials beginning in Japan?

Thnx, S.

selkie - there is someone actively seeking doctors, etc. in India and Germany. Watch the postings for any announcement by her.

_________________
My name is not really Johnson. MSed up since 1993

Before the closure of ms-mri there was a map with locations including 2 in Japan (Yokohama and South Tokyo) and Beijing in China.
I did not took the addresses quickly enough. After it reopen; that map disappeared...

There are Drs. in Taiwan who already made this operation; I was given the addresses by Dr.Schilling.

I am in the process of trying to find those drs. The neurologist who consult me is also very interested; so are all people in the Taiwan's MS society.

But it still too early (here) to have anything tangible as of now. I will keep the group informed when I have reliable info.

Cheers and be well;

Algis

I hope Duke and/or UNC make the 2010 list. I'm pushing to make that happen. (See my letter to Chapel Hill News) in forum/topic. Judi

Here you have them. Everything is still in this thread: http://www.thisisms.com/ftopict-8490-haacke.html

Haibo Xu, MD
Dept. of Radiology, uni0n Hospital, Tongji Medical College
Huazhong Univ. of Science and Technology, 1277 Jiefang Ave, Wuhan, Hubei 430022, CHINA
+86-27-85726410
+86-27-85776343

Kohsuke Kudo, MD
Advanced Medical Research Center, Iwate Medical University
19-1 Uchimaru, Morioka 020-8505, JAPAN
+81-19-6515111
+81-19-6221091

Satoshi Terae, MD, PhD
Dept. of Radiology, Hokkaido University Hospital and Graduate School of Medicine
N15 W7, Kita-ku, Sapporo 060-8638, JAPAN
+81-11-7065977
+81-11-7067876

That is it - Thanks - Sorry my lack of perseverance but there are sooooo many posts in this thread...

Thank you!

algis, Dr Haacke's study at the ms-mri website, is only for imaging. He is not doing any procedures. He is not sn MD, he is a physicist and a designer of MRI software and protocols.