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An email from Holly's sister

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Sharon

Post subject: An email from Holly's sister

Posted: Tue Dec 15, 2009 5:12 pm

Family Elder

Joined: Sun Nov 07, 2004 4:00 pm
Posts: 1228
Location: Colorado

Yesterday, I received an email from Holly's sister.

Quote:

Hi, Sharon-John (Holly's boyfriend) called me yesterday and said that it was posted on the MS website that Holly's mother died of the same thing-I went and found those postings and am very grateful to you for clarifying the circumstances surrounding Holly at the time of her death...
AS for our mother, she is still alive...she had a massive brain bleed do to a fall where she hit her head on a piece of furniture...I was wondering if you could post that on the website...I can't decide if it's important to clarify that, but it may be. Also, Holly's birthday is Friday, Dec. 18 so people might want to know that...she would have been 51. Meanwhile, I hope you are still doing well after your surgery and I hope you have seen some lasting improvements in MS effects-I'd love to be updated! Trudy

I will do a search on the forum to find the postings about Holly's mother, and then ask each author to edit the post - okay?

I had forgotten that this week was Holly's birthday -- was glad that Trudy reminded me. Maybe this week we can each have a private moment remembering our dear friend.

Sharon

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LR1234

Post subject:

Posted: Tue Dec 15, 2009 5:23 pm

Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1420
Location: California

Thanks for posting Sharon, yes I had heard that Holly's mother had died in a similar situation. I am glad that has been cleared up.

Missing you Holly xxx

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cheerleader

Post subject:

Posted: Tue Dec 15, 2009 5:33 pm

Family Elder

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4696
Location: southern California

will clear that up in my posts, Sharon. I had heard that and written it as well. Apologies to John and Holly's family. We will be thinking of her Friday-
Joan

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

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CureIous

Post subject:

Posted: Tue Dec 15, 2009 5:42 pm

Family Elder

Joined: Tue Jul 14, 2009 3:00 pm
Posts: 1157
Location: Riverside, CA

Thanks Sharon. That's all we want is the truth. Think I mentioned it a time or two also though haven't the foggiest where, would have been awhile ago. Thanks for clearing that up, and thanks to Trudy and all the family too, no better way to spend the 18th than in remembrance of Holly.

Mark.

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

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bohemianbill

Post subject:

Posted: Tue Dec 15, 2009 6:01 pm

Family Member

Joined: Fri Nov 27, 2009 4:00 pm
Posts: 81

My Dear Holly you are now part of my families prayers, You are now a disciple of the CCSVI fight , organize, educate, may you be the power in what is all things CCSVI. (especially above

Rest Easy

God Bless

-keep the heat to the feet- ANY WAY WE CAN

Give her hell Holly

BB

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ozarkcanoer

Post subject:

Posted: Tue Dec 15, 2009 6:18 pm

Family Elder

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri

I never knew Holly since I am relatively new to this CCSVI board. I wish I had known her. She sounds like a lovely woman, and her family is so nice to support us after their sad year. I will think of her on her birthday.

ozarkcanoer

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Johnson

Post subject:

Posted: Tue Dec 15, 2009 6:48 pm

Family Elder

Joined: Tue Dec 01, 2009 4:00 pm
Posts: 979
Location: Ucluluet, BC

I will edit my own reference, and I am sorry if I have written out of turn. I am also very sorry for your loss. My birthday is Friday too, so I will think of your sister.

_________________
My name is not really Johnson. MSed up since 1993

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cheerleader

Post subject:

Posted: Tue Dec 15, 2009 6:51 pm

Family Elder

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4696
Location: southern California

for those who would like to learn more about our friend...search Holly's user name "peekaboo" and read some of her posts. She was always encouraging, funny, and indomitable. I'm so sorry for her family and loved ones' loss-

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

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skydog

Post subject:

Posted: Tue Dec 15, 2009 6:57 pm

Family Elder

Joined: Tue Feb 24, 2009 4:00 pm
Posts: 307
Location: North Oregon Coast

Always missed and forever remembered. God bless Holly's family in this season of hope. I will pause and reflect on her birthday. Peace to all, Mark

_________________
Plant a BIG Garden Live in the Moment

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catfreak

Post subject:

Posted: Tue Dec 15, 2009 9:44 pm

Family Elder

Joined: Sun Jun 01, 2008 3:00 pm
Posts: 791
Location: Mississippi

Holly's family and friends were blessed to have Holly in their lives.

I never got to meet her in person but we were friends online and I miss her in a way that there are no words for. She was my encouragement.

I will spend a moment of Friday in silence for Holly and the rest having a good time for Holly by playing some Greatful Dead and some Pink Floyd and thinking of her smile!

Cat

_________________
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.

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Dovechick

Post subject: Holly's birthday

Posted: Tue Dec 15, 2009 11:23 pm

Family Elder

Joined: Sun Feb 12, 2006 4:00 pm
Posts: 345
Location: Sussex UK

Like some others here I never had the opportunity to meet Holly online, but she is now part of our story and will always be important to us. If she was anything like my daughter (and I suspect that everyone who has MS and is not prepared to submit to the disease is like my daugher) she was prepared to take a risk, she was not a victim of her disease, she was in control of her life in ways that others would not dare to be, unfortunately none of us are in control of our deaths.
My husband's birthday is also on Friday 18th, so when I give him his present I will spare a thought and a thank you for Holly, for adding to our story.

_________________
Michele, warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

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jay123

Post subject:

Posted: Wed Dec 16, 2009 6:16 am

Family Elder

Joined: Mon Sep 21, 2009 3:00 pm
Posts: 374

Isn't there a memorial fund for Holly that supports Dr. Dake's work? Is it still active?

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Sharon

Post subject:

Posted: Wed Dec 16, 2009 7:25 am

Family Elder

Joined: Sun Nov 07, 2004 4:00 pm
Posts: 1228
Location: Colorado

Jay123 -
Dr. Dake set up a fund "The MS Innovations Fund" - you can contribute to it in the name of Holly. Just to clarify - the fund was already in place but not active prior to Holly's death. The fund became active when the first check was received. Stanford made it possible for us to donate to the fund in Holly's name. Please see this thread http://www.thisisms.com/ftopic-8324-0.html. The information is also on the CCSVI Facebook site.

Sharon

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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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