Excellent news from UBC

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Excellent news from UBC

Postby Alica » Tue Dec 15, 2009 6:11 pm

It has just been announced that UBC will be testing 100 MS patients with Doppler ultrasound. If Dr. Zamboni’s theory is correct, they are going to be treating patients right here in Vancouver, BC. The studies are going to start in as soon as two months.
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Postby CureIous » Tue Dec 15, 2009 6:14 pm

Right ON. Canada gets a whoop-whoop. Thanks for the report! Gonna be an awful lot of people drawing straws up in Canada. Hopefully this will open the dam up just a tad. Any word on training there? Are they in conjunction at all with Buffalo/JNI? I'm hinting at the training specifically.

Wow they are talking treatment too!??

Mark
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby ozarkcanoer » Tue Dec 15, 2009 6:15 pm

That is good news. I'll bet they are waiting for 2 months so they can learn how to do the ultrasound properly like Dr Zamboni said in the documentary. He said to learn how to do the ultrasound on normal controls first and to test it on 100 or so "ordinary" people. Then you will be ready to try it on MS patients.

Now we need more centers to step up to the plate and try this out.

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Postby Alica » Tue Dec 15, 2009 6:21 pm

It was said that it would take only three days to train professionals to read these new Doppler ultrasounds.
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CTV news coverage tonight Dec 15

Postby Nick » Tue Dec 15, 2009 7:27 pm

We are doing a news story tonight about the fact that University of British Columbia and Vancouver Coastal Health plan to start a study on CCSVI..

Their study will be a collaboration between neurology, radiology, interventional vascular specialists and physics experts

It looks like the study will have two parts:
1) to see if the treatment works...
2. to develop an MRI protocol that gives an imaging biomarker of the existence of CCSVI in patients with MS, and (ideally) unequivocally identifies the location of the stenosis."

It is a much more aggressive study than we thought ..i.e. if they see stenosis they will treat it...


Enjoy
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Last edited by Nick on Wed Dec 16, 2009 3:33 pm, edited 1 time in total.
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Postby Alica » Tue Dec 15, 2009 7:56 pm

Nick,
thank you so very much for sharing this with us.

Training sessions are being set up in Italy as we speak.
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Postby CureIous » Tue Dec 15, 2009 8:00 pm

Alica wrote:Nick,
thank you so very much for sharing this with us.

Training sessions are being set up in Italy as we speak.


That is so incredible to hear! Thanks again! Wow! Double wow!
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby C3Glo » Tue Dec 15, 2009 8:20 pm

Here is the link to the CTV News broadcast talking about it ... I posted on a couple other topics too so if you're seeing again ... sorry!

http://watch.ctv.ca/news/clip247004#clip247004
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Postby thornyrose76 » Tue Dec 15, 2009 8:20 pm

This is wonderful news, and everything is moving along quickly here, fantastic! :D
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Postby Alica » Tue Dec 15, 2009 8:27 pm

C3Glo wrote:Here is the link to the CTV News broadcast talking about it ... I posted on a couple other topics too so if you're seeing again ... sorry!

http://watch.ctv.ca/news/clip247004#clip247004


Don't worry about it. Spread the news. :wink:
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Postby Mike56 » Wed Dec 16, 2009 9:47 am

Cool! Dr Traboulsee is my Neurolosist at UBC. I wish I had the 1/2 a million bucks they need!
Raises concern for the people planning to spend $2300 for a private mri/doppler ccsvi test in Vancouver though. The money is one thing, but more importantly does this private facility have the training to perform and read the tests correctly?
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Thanks to Canadian MS Society and UBC

Postby Rebecca » Wed Dec 16, 2009 10:02 am

Wow! Thanks to both the Canadian MS Society and UBC for the quick response! I love both.

Overall, I have seen the Canadian MS Society do such helpful research. I love, love, love it! Now we need to get our USA MS Society to be more responsive to those of us with MS.

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