CBC coverage of Buffalo work

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CBC coverage of Buffalo work

Postby TFau » Tue Dec 15, 2009 8:31 pm

Did anyone see this on The National tonight (this is our Canadian national nightly news)? My overall impression was that it wasn't as hopeful as other coverage, but good coverage nonetheless.

I'll see if I can find it and post a link.

Lots of CCSVI news being reported in Canada tonight!
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Postby TFau » Tue Dec 15, 2009 8:38 pm

http://www.cbc.ca/health/story/2009/12/ ... ffalo.html

Okay, here is the link. The following bit I didn't like, but I think it was well intended in terms of needing reliable data for safety and efficacy. However, I think that expecting most people to wait for 2 years is unrealistic. This isn't a drug trial - a different trial protocol should apply!

"Yet researchers like Zivadinov who are most excited about Zamboni's findings don't believe narrowed veins cause MS by themselves. Liberation treatment alone likely isn't a cure, Zivadinov said, adding media reports have been overly dramatic."

"It created a huge interest and hope from MS patients that cannot be fulfilled immediately."
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Postby CureIous » Tue Dec 15, 2009 9:40 pm

TFau wrote:http://www.cbc.ca/health/story/2009/12/15/multiple-sclerosis-veins-buffalo.html

Okay, here is the link. The following bit I didn't like, but I think it was well intended in terms of needing reliable data for safety and efficacy. However, I think that expecting most people to wait for 2 years is unrealistic. This isn't a drug trial - a different trial protocol should apply!

"Yet researchers like Zivadinov who are most excited about Zamboni's findings don't believe narrowed veins cause MS by themselves. Liberation treatment alone likely isn't a cure, Zivadinov said, adding media reports have been overly dramatic."

"It created a huge interest and hope from MS patients that cannot be fulfilled immediately."


It's smart though, tones it down just a bit. I doubt it's what they really think, but smart nonetheless. Just by my count, in my own sphere I see 5 negatives so far on MRV's. Not surprising and totally expected for a rush job without the "how to" being widely disseminated and understood.
My thought is we'll get this off the ground way faster with ultrasound, and those techs going overseas can name their price when they get back. Hopefully they will multiply the effort a hundredfold, after all, we aren't talking about training people who don't know UT, just adding to their body of knowledge, and HOPEFULLY we'll have enough machines in place to equal the demand. Hopefully.

The system is going to go through some serious growing pains in the very near future...

Mark
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby jay123 » Wed Dec 16, 2009 6:23 am

TFau wrote:http://www.cbc.ca/health/story/2009/12/15/multiple-sclerosis-veins-buffalo.html

Okay, here is the link. The following bit I didn't like, but I think it was well intended in terms of needing reliable data for safety and efficacy. However, I think that expecting most people to wait for 2 years is unrealistic. This isn't a drug trial - a different trial protocol should apply!

"Yet researchers like Zivadinov who are most excited about Zamboni's findings don't believe narrowed veins cause MS by themselves. Liberation treatment alone likely isn't a cure, Zivadinov said, adding media reports have been overly dramatic."

"It created a huge interest and hope from MS patients that cannot be fulfilled immediately."


But here was his quote a few months ago -
"If we can prove our hypothesis, that cerebrospinal venous insufficiency is the underlying cause of MS," said Robert Zivadinov, M.D., Ph.D., UB associate professor of neurology, director of the Buffalo Neuroimaging Analysis Center (BNAC) and principal investigator on the study, "it is going to change the face of how we understand MS."
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Postby TFau » Wed Dec 16, 2009 7:45 am

I know - has he changed his mind?
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Postby jay123 » Wed Dec 16, 2009 7:48 am

Or have the neuro's and drug companies at UB gotten to him?
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