bestadmom wrote:Johnson, I love your foot in the door comment.
If the NMSS solicited neurologists, and they don't get any requests for funding, they can say they did their part and nothing came of it. They need to step up or step aside.
Thanks bestadmom, for getting a kick out of that. Snicker
Step up or... indeed. Snicker again.
They seem to be a bit more interested at UBC and Saskatoon now, and are going multi-disciplinary, which is the only sensible route. But still, it seems as if everyone is still turning to neurology in reflex - a Semmelweis Reflex.
Here is the map that I see as the most practical;
GP refers to radiology to diagnose stenosis in veins, possible reflux ->
Stenosis determined, GP refers to vascular guy, who opens veins->
Symptoms completely resolved. Praise whomever! Hallelujah! Thank you! ->
Remaining neurological issues, GP refers to neurologist. ->
Then, iron chelation. Physical/speech therapy. Fund raising. Return to the world of others.
I think that we
have to choose to step out, and dance around, or kick the legs out from under whomever is in the way.
I don't know much about the official MS Societies, as I never had any use for, or interest in them. They seem to be counter-productive in a lot of jurisdictions. I say forget about them. The most crushing thing that society can do, is to shun. Sociopaths become invisible and silent. Just try it on your dog when it misbehaves. Completely ignore it as if it was not really there, and its behaviour will change.
We are the real
My name is not really Johnson. MSed up since 1993