CCSVI Association?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI Association?

Postby bmunkres » Thu Dec 17, 2009 2:24 pm

Hello all,

I know that there is a complex set of issues in funding research, as well as getting the information out to the general public. Because this is a vascular set of issues - even though it's end result is Multiple Sclerosis wont it be a bit hard for the MS Society to support this? - what may entail far more than just MS patients?

How do we form an organization to support the funding of research and assist the process of moving this forward politically in the US as well as the world?

Is it possible to make a change in how this gets done?

Respectfully,

Ben Munkres
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Postby Needled » Fri Dec 18, 2009 9:42 am

Hi Ben,
Welcome! Good questions. Other posts have discussed these issues, and it’s still in the works. Do you have any ideas? Have you had any luck or interest from any of your doctors -- neuro, pcp, local vascular and/or IR docs? Maybe they’d have suggestions.
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