THANK YOU FOR SUPPORTING HOLLY

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

THANK YOU FOR SUPPORTING HOLLY

Postby jerkbutt » Thu Dec 17, 2009 7:35 pm

HOLLY WOULD BE LAUGHING.SHE GAVE ME THE NICKNAME JERKBUTT.WE LIVED 12 YEARS TOGETHER,HAPPY B- DAY HONEY.I MISS YOU.AND THANK YOU EVERYONE FOR YOUR SUPPORT FOR HOLLY EVERYONE,TO MANY TO LIST.HOLLY LOVED THIS WEBSITE.TAKE CARE,GODBLESS EVERYONE. :peace:
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Re: THANK YOU FOR SUPPORTING HOLLY

Postby CureIous » Thu Dec 17, 2009 7:40 pm

jerkbutt wrote:HOLLY WOULD BE LAUGHING.SHE GAVE ME THE NICKNAME JERKBUTT.WE LIVED 12 YEARS TOGETHER,HAPPY B- DAY HONEY.I MISS YOU.AND THANK YOU EVERYONE FOR YOUR SUPPORT FOR HOLLY EVERYONE,TO MANY TO LIST.HOLLY LOVED THIS WEBSITE.TAKE CARE,GODBLESS EVERYONE. :peace:


Oh I'm so very glad you posted jerkbutt, that REALLY sounds like something Holly would have come up with from my short time getting to know her. Please PM me if you get back to see this, I'd like to talk a bit more about Holly and didn't know how to reach the family..... Thank you very much for posting!

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby Arcee » Thu Dec 17, 2009 7:50 pm

Holly was a joy to have on this website. She is missed.
Thank you for posting. May you gain comfort from staying connected with us.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby cheerleader » Thu Dec 17, 2009 9:37 pm

thanks for coming on and reminding us about Holly's birthday tomorrow....I'm sure she called you jerkbutt in a loving way (or did you deserve that name???) :wink:

Please stay connected with us all...we're helping each other get thru, one day at a time. Holly was a huge part of all of this-
Joan
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Johnson » Thu Dec 17, 2009 10:01 pm

I came to this place only very recently, and so I did not know Holly. I do share her birthday though, and that feels like I have some connection.

I'm sorry for your loss. I know it must be so difficult for you, and those who loved her so.

Like the others who have said so already, I hope that you can take some small comfort in sharing the dream that Holly had by reading here of those who follow in her path to healing. Some of us, who are not as brave as she was, included.

Thank you, jerkbutt.
My name is not really Johnson. MSed up since 1993
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Postby ErikaSlovakia » Fri Dec 18, 2009 1:32 am

Holly,
I have often been thinking of you...
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby jimmylegs » Fri Dec 18, 2009 5:52 am

happy bday peek <3 thx for posting JB
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Postby Loobie » Fri Dec 18, 2009 6:15 am

I was thinking of her yesterday when ordering "Terrapin Station" for my stepson; she loved the Grateful Dead. Happy birthday Holly.
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Postby Needled » Fri Dec 18, 2009 6:16 am

Thinking of you Holly and your friends and family. Miss you...
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Postby javaneen » Fri Dec 18, 2009 7:22 pm

You are in my thoughts Holly! Thanks for posting this for us Jerkbut...haha I have to laugh at the name :lol:
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Postby mrhodes40 » Fri Dec 18, 2009 8:02 pm

Holly is not forgotten. Her legacy lives on in how she touched so many of us. I was trepidatious seeing your name--and laughed when you told the story of where it came from. Thank you for reaching out and saying hello to us Jerkbutt!!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby Algis » Fri Dec 18, 2009 8:04 pm

How could we ever forget :cry:
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Postby catfreak » Fri Dec 18, 2009 8:44 pm

Hi Jerkbutt!!

So glad you came on TIMS.

Holly is our Angel and will NEVER be forgotten.

I miss her and I know everyone else does too.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby Sharon » Fri Dec 18, 2009 9:30 pm

JB - thank you so much for coming on TIMS - I know you have been lurking around the site and have read the many, many posts from people who never met Holly, but felt as if she was their friend. I remember the phone conversations Holly and I had when we were at Stanford in June. What a wonderful sense of humor -- she had me laughing soon after my surgery. We became friends and support buddies.

This is a tough time for you and for Holly's family -- know that there are kind thoughts and prayers being sent your way.

Sharon
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