A conference of dr. Zamboni in January 2010

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

me again, sorry, but I'm trying to help!

Postby reg613 » Mon Dec 21, 2009 7:15 am

I should have emphasized that I did include a catch-all issue for detractors on my son's case. There are always so many ... plenty of damage control and risk management on this one!

So to spare any trolls much work in acting like they know better than I do what happened, and any posters who were there at the time, the only issue to be addressed (and I welcome this) is why I wasn't called when my son was admitted with aphasia. And, after he had given my name as the person he wished to be called right away.

He even tried to leave the hospital according to his human rights, but was yanked back from the elevator by security. So he really must have wanted me to be called! He was fully competent, having come to the hospital on his own steam a few hours earlier by taxi, and with the specific intention of getting the steroid treatment he was used to.

That's all. This question cannot be answered therefore everything else I have said must be true. Please refrain from trying your luck with any other wise observations.
reg613
 

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Postby cah » Mon Dec 21, 2009 6:30 pm

Here's an article about the meeting. I'm shure there are much more details in it, but it's also Italian :lol:

<shortened url>
"There is only one good, knowledge, and one evil, ignorance." Socrates
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Postby jr5646 » Mon Dec 21, 2009 7:12 pm

cah wrote:Here's an article about the meeting. I'm shure there are much more details in it, but it's also Italian :lol:


Thanks for the link cah...

Here is the translated version (Google Translate):

Bologna formed the Ad Hoc Committee on Scientific CCSVI Italian Multiple Sclerosis Foundation 21 December 2009 @ 10:25 in Bologna, Health, Health

Tomorrow we will hold the first meeting of the Scientific Committee established ad hoc CCSVI (cerebrospinal chronic venous insufficiency) of the Italian Foundation for Multiple Sclerosis to evaluate the results published in recent months on the primary international scientific journals and the future path of research and its relationship CCSVI with multiple sclerosis.

Born in recent weeks the collaboration between the Italian Multiple Sclerosis Society and the Foundation Hilarescere, which financed and supported the studies of Prof. Paolo Zamboni, University of Ferrara, with the intent to follow the scientific insights on this issue.
"The Italian Multiple Sclerosis Foundation - says President Prof. Mario Alberto Battaglia - decided to establish a Scientific Committee specified that I will chair, to assess fully the state of the research conducted by Professor Zamboni and his staff, and the research hypotheses be prioritized in future. For these targets on 22 December this committee of experts will meet with Prof. Paolo Zamboni, University of Ferrara and Dr. Fabrizio Salvi, University of Bologna. Were invited to participate in experts from the National Associations belonging to the network of our International Federation of Multiple Sclerosis. "

"The Foundation - Battle continues - is available to support research in this area, after scientific assessment by its Scientific Committee that operates according to criteria widely known, and in line with those adopted internationally by all the scientific institutions."
The national and international community of multiple sclerosis in recent months has been following the results published in scientific journals of research conducted by Professor Paolo Zamboni on the identification of a new disease, chronic venous insufficiency cerebrospinal CCSVI syndrome, unknown until now, but acclaratasi vascular disease as the Consensus Conference of the International Association of Vascular Surgeons (UIP) in Monaco last September, and its relationship with multiple sclerosis, also from the clinical point of view.
Much attention has been given in Italy by the Italian Multiple Sclerosis Society (AISM), an association of people with multiple sclerosis and its Foundation (IMF), the major funder of scientific research on this disease in Italy (www.aism. com). The IMF AISM and working closely with the International Federation of Multiple Sclerosis and other national associations, particularly the U.S. and Canada who have expressed great interest and willingness to fund, following an assessment of its scientific committees, specific studies in this area.

"E 'in a broad international collaboration and synergy of all institutions and associations that we must give a clear answer to people with multiple sclerosis," said Battle, "so we must unite as a national research efforts. For this began collaborating with the Foundation Hilarescere and we are willing to deal with the universities and the region, address the research that may be needed in the appropriate directions and involving specialized clinical centers are concerned. "
The Foundation Hilarescere, aims to foster medical research and scientific cooperation in the field of diseases etiology unknown or poorly defined. That's why he immediately supported the research project developed by Professor Zamboni and Dr. Salvi.

"The advancement of human knowledge does not always reflect the roles and default locations. - Reminds the President of the Foundation Hilarescere, prof. Fabio Roversi-Monaco - As in the case of this study promoted by Hilarescere, born on the desire of a vascular surgeon of international standing, Professor Paolo Zamboni, to understand more deeply, in a completely new, a serious problem doctor. The rigorous scientific mode with which Professor Zamboni has conducted research has led the Council of the Fondazione Cassa di Risparmio in Bologna to study the preliminary results, but already strong, with any interest which constitute and support the Foundation Hilarescere. Research has already led to a significant result that was presented in various locations in the world medical science. With joy we welcomed the invitation dell'AISM and his Foundation to work together to study together, the possible positive effects of the open. The richness and variety of talent involved are voted as the word etymologically stresses hilarescere to return the smile to patients suffering from diseases still without definitive answers. "

Article URL: <shortened url>
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Postby cah » Mon Dec 21, 2009 7:45 pm

That's interesting. I've translated it via google from italian to german and it did hardly make any sense. Seems that google is better in translating to english. I'll know for the future.

Now to the relevant point:

DOESN'T THAT SOUND REALLY, REALLY GREAT?
"There is only one good, knowledge, and one evil, ignorance." Socrates
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Postby judipom » Mon Dec 21, 2009 8:40 pm

Reg613--I am so sorry about the loss of your son. I can not even imagine what that was like for you. I hope I never turn away from another human being who is suffering. The only thing that comes to mind is from my christian upbringing "Forgive them, they know not what they do." Judi
RRMS Diagnosed 1997
My house burned down, now I can see the moon.
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Meeting was postponed

Postby cah » Wed Dec 23, 2009 6:11 am

New infos on the italian MS Society website:

<shortened url>

*** 22/12/2009 ***
Weather conditions and resulting traffic problems this morning have made it impossible for all participants reach the place of the meeting of Scientific Committee established ad hoc CCSVI (cerebrospinal chronic venous insufficiency) The meeting was therefore postponed.
Soon you will define a new date which allows all participants, from Italy and abroad, to be present.
"There is only one good, knowledge, and one evil, ignorance." Socrates
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Postby Rainbolt » Sun Dec 27, 2009 12:34 am

Sorry for your loss too Reg and I believe found a post elsewhere by someone regarding this... http://www.dailystrength.org/c/Multiple ... ucial-info

My first lesion was 2.3 cms I've never heard the term turmefactive (sp?) but now that you've sparked my interest it seems my onset was the same as several people who presented with this including having one side go stroke like.

I live in Toronto and thankfully have never gone through such horrid treatment. I am so sorry for what you went through and I hope you taught TWH a lesson!

I am with one of the top neuros in the country, Dr. Paul O'Connor and I wouldn't be surprised if he'll be a big part of the CCSVI info that may come out as I know he is wanting to do studies himself on it :)
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