This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Thu May 23, 2013 1:20 am

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 1 of 1
  [ 10 posts ] 
  Print view Previous topic | Next topic 
Author Message
thgel
PostPosted: Fri Dec 18, 2009 6:09 am 
Offline
Newbie
User avatar

Joined: Thu Dec 17, 2009 4:00 pm
Posts: 3
Hi,

does anyone knows how can we take the appropriate test for CCSVI in Greece?

Does anyone khow how we can contact Dr Zamboni for giving us instructions or how to visit him?

Thank you in advance
Top
 Profile  
 
masci
 Post subject:
PostPosted: Fri Dec 18, 2009 6:33 am 
Offline
Getting to Know You...
User avatar

Joined: Fri Sep 25, 2009 3:00 pm
Posts: 22
Email Zamboni zmp@unife.it
Top
 Profile  
 
thgel
 Post subject:
PostPosted: Mon Dec 21, 2009 2:15 am 
Offline
Newbie
User avatar

Joined: Thu Dec 17, 2009 4:00 pm
Posts: 3
Hi,

I sent an email to him but I received a "common" general anwser.
How can I contact someone in Italy or in Greece to do the appropriate tests?

Thank you in advance.
Top
 Profile  
 
Camilla
 Post subject:
PostPosted: Mon Dec 21, 2009 5:01 am 
Offline
Family Member
User avatar

Joined: Sat Nov 28, 2009 4:00 pm
Posts: 35
Location: London
Hi,

I am in the UK. What may work is to find a good doppler technician, ask him/her to study the Zaboni/Simka protocolas (downloadable from the research thread on this site) and see if they can try one on you.

I am sure there are Zaboni-trained radiologists in Ferrara, but have no idea how to reach them!

Camilla
Top
 Profile  
 
sou
 Post subject:
PostPosted: Mon Dec 21, 2009 6:03 am 
Offline
Family Elder
User avatar

Joined: Sat Dec 20, 2008 4:00 pm
Posts: 582
Location: Greece
Hi.

I live in Patra, Greece. We have been looking for it with my radiologist, who has studied in Italy. We haven't come to a very accurate conclusion yet and the Ferrara team is quite reluctant in giving inforamtion. PM me if you want to discuss further details.

sou

_________________
Shortest joke: "We may not be able to cure MS but we can manage its symptoms."
Top
 Profile  
 
GiCi
 Post subject: Zamboni
PostPosted: Mon Dec 21, 2009 10:59 am 
Offline
Family Elder
User avatar

Joined: Fri Aug 14, 2009 3:00 pm
Posts: 114
I would like to rectify some information given in this topic.

1. Zamboni's e-mail address is now zambo@unife.it.
2. In the paper he published on the J Vascular Surgery in late Nov 2009 there are clear instructions regarding the machine his group used and how to conduct the Doppler study.
3. Paolo Zamboni told me recently that he cannot treat new patients at present, although he has obtained permission to treat patients with re-occurrence of the venous obstructions. There is no point therefore to contact Zamboni while the restrictions he is suffering are still in place.
GiCi
Top
 Profile  
 
thgel
 Post subject:
PostPosted: Tue Dec 22, 2009 2:07 am 
Offline
Newbie
User avatar

Joined: Thu Dec 17, 2009 4:00 pm
Posts: 3
Thank you for the information.

Please if you can inform us when these restrictions go away.

I thought that he is receiving hundred of e-mails every day so it is sensible not to have the time to answer personally to all of us.

I am sorry I didn't know the fact of restrictions!!!
Top
 Profile  
 
broomdancer
 Post subject:
PostPosted: Wed Dec 23, 2009 4:08 pm 
Offline
Family Member
User avatar

Joined: Fri Dec 18, 2009 4:00 pm
Posts: 73
Newbie here:
Please, can anyone explain why and who halted Dr. Zamboni"s procedures?
Thank you.
Diana
Top
 Profile  
 
SandyK
 Post subject: Dr. Zamboni
PostPosted: Wed Dec 23, 2009 4:52 pm 
Offline
Family Elder
User avatar

Joined: Wed Oct 14, 2009 3:00 pm
Posts: 221
Location: WA
I just got my email today telling me he couldn't help. I'm still waiting to hear from Poland. I emailed him only a week ago.
Top
 Profile  
 
negz
 Post subject:
PostPosted: Fri Mar 26, 2010 5:09 am 
Offline
Newbie
User avatar

Joined: Thu Mar 25, 2010 4:00 pm
Posts: 1
is there anything happening in poland regarding the new treatment of ms?
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 1 of 1
  [ 10 posts ] 

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Is there anyway to email/contact Dr Zamboni/secretary?

adamt

1

811

Sat Jul 10, 2010 4:31 am

GiCi View the latest post

There are no new unread posts for this topic. What is the best way to contact Dr Simka?

Mutley

12

1579

Wed Nov 18, 2009 12:41 pm

Mutley View the latest post

There are no new unread posts for this topic. CONTACT CBS'S 60 MINUTES

[ Go to pageGo to page: 1, 2 ]

thornyrose76

15

3869

Fri Dec 18, 2009 3:49 pm

ozarkcanoer View the latest post

There are no new unread posts for this topic. Normal MRV...contact help?

healthymama

11

1987

Sat Dec 19, 2009 1:03 am

thisisalex View the latest post

There are no new unread posts for this topic. help!... how to contact Dr simka???

popsy09

3

1253

Sat Feb 27, 2010 8:38 pm

L View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: