Thank you for the warm welcome and your reactions. I know this is not really for me but let me give you one further humble suggestion if I may.
Zamboni expects that over the next 10 years, 10,000 papers will appear on this subject. I am sure he is right that a lot of research will be done on the precise mechanisms that cause MS, on the role of iron on the vessel walls, on how it all leads to the scars, on whether and how venous insuffiency could affect other neuro-degenerative diseases etc etc. And I am sure a lot of "research" will be done on the very question how on earth things could have gone so terribly wrong, and what lessons we may draw for the future and for other health issues.
There is always this reflex to call for more research, here things on this side of the ocean are not different from the US. Further research is certainly important, but at this stage it is the patients' interests that should prevail above all. Therefore, in stead of starting all over again, we must call on doctors to see, to read, to assess, to appreciate, to understand etc what Zamboni has already done [I was told that they are very bad at reading… so there is probably some truth in this http://healthblog.ctv.ca/post/Iron-Mult ... eflex.aspx
I fully concur with Sharon about the huge financial benefits for the society (in Europe the figures will be of the same order), not to mention the well being of the patients themselves (which is difficult to express as a pecuniary value but if I may give it a figure with the experience of an MS patient, it is at least as big as the direct financial implication).
In this context, if you consider writing to your politicians, it would occur to me that you should perhaps elaborate a bit more on the dimension of the patients' well being at this stage of the process and the big consequential benefits of a more healthy society. It is in this context that I referred to the notion of governance in my previous message (or may be I should have used the word gouvernance).
I keep following from Europe with greatest interest how all this will unfold, unravel and erupt in the USA.
Best wishes to all!