I wanted to post another update:
The holidays were fantastic. Last year I was so tired and in pain that I had to go back to bed immediately after opening presents on Christmas morning. Both of my boys asked me if I was going to be able to stay up with them after we opened presents this year. I was shocked that they both remembered this detail and it broke my heart. I'm happy to report I was able to enjoy the entire day with my family!
We also went sledding. I climbed up hills in the snow all day long! It was so fun to be able to do these things again. My husband was just amazed. He said before the surgery I would have spent most of the day in the car resting. I never would have been able to climb the hills. This was quite an accomplishment for me and I'll remember that day as long as I live.
New Years Eve was fun and full of socializing and dancing. I actually made it to midnight! I haven't been able to do that in years.
I've been volunteering in my kids school, exercising, cooking, socializing, and best of all, chasing my kids!
I did have a run in with a bad cold and a nasty UTI. While I was at my doctor's office he insisted I get the H1N1 vaccine. I agreed, although I have never gotten the flu vaccines before. Unfortunately, I immediately had a worsening of my symptoms. I was really fatigued, achy, and overall I felt bad. After a week or so I talked with Dr. Dake about this. He thought the vaccine may be the culprit. He said there was another patient who had immediate worsening of their symptoms after the H1N1. I could have kicked myself for letting my GP talk me into getting the vaccine! Fortunately, after a couple of weeks I am feeling back to normal. It was really scary to slide backwards.
It has been almost 14 weeks since I had the procedure now. The improvements are beginning to feel normal now. My new normal:) The shoulder issue is 80% better. My range of motion is improved and the shoulder pain is almost gone. My neck has been a little stiff and the muscles have been twitching a bit. I find I still need to take some pain medicine at night in order to sleep well. But, I am taking nothing during the day.
Am I happy that I did this??? YES! Is my family happy??? YES!
My only wish is that everyone could have access to treatment. We need to keep pushing the CCSVI research forward. Please don't give up!
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.