Paying for CCSVI treatment

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Paying for CCSVI treatment

Postby SandyK » Sat Dec 19, 2009 11:12 pm

I have been reading all the posts about members who have had the surgery and I can't help but by envious. Do all of the people who have had it have insurance that pays for it? That's amazing it it's true. I can't get insurance. I have been in contact with Dr. Dake about a trial but since I don't have a doctor that doesn't look good either.

When Dr. Dake was doing the surgeries, I had turned in all my paperwork for financial assistance but now it's terminated.

I'm not expecting answers, I'm just having a pity party. 16 years is long enough and I feel like I am gonna miss my chance. I should move to a country with health care.

I am still contacting universities and centers to pay attention and hope they will do something, but as you one is listening.
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Postby ErikaSlovakia » Sat Dec 19, 2009 11:17 pm

Hi SandyK,
I think you will be lucky with the trial with Dr. Dake. Try to get on a list.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby greyman » Sun Dec 20, 2009 6:50 am

ErikaSlovakia wrote:Hi SandyK,
I think you will be lucky with the trial with Dr. Dake. Try to get on a list.

And coming to Poland from the U.S. wouldn't be that expensive, I guess.
~$3200 for the procedure
~$1000 for the flight (if booked early enough)
~$800 for the hotel, food, taxis, etc.
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