New article from Ashton Embry

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Billmeik » Mon Dec 21, 2009 8:32 am

Quote:
I might note that small studies in Poland and at both Stanford and the University of Buffalo in the USA have already confirmed these findings


How can he know this, unless he is privy to information no one else is?[quote][/quote]

those are published papers. Buffalo did a small study like 35 people and 100% of mssers had ccsvi
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dr. embro's letter

Postby esta » Mon Dec 21, 2009 12:01 pm

hello from canada. i myself have booked with dr. simka in poland, knowing our 'further testings' will be years in the making before we will ever see the light here. i believe the canadian government should take over this whole thing also and sooner than later but oh, where to start...
i realized quickly, after seeing my dr.that the tests we need are very specialized. what's the rush if the liberation treatment cannot be performed until drs. are trained. it will happen in the private sector first, he said and its coming soon. our job is to be educated and aware before we commit our money.
i loved dr. embro's paper, and took away the knowledge that we just have to be prepared for the backlash
i am thinking of contacting the vancouver ms clinic to see if they'd be interested in studying me, pre and post of my treatment... just nervous they'd get that shut down too. :D
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We should

Postby leetz » Mon Dec 21, 2009 12:56 pm

I know it is a stretch here but why not write the president....go all the way. If enough of us get together---His father-in law did suffer from MS..maybe Michelle Obama would find this VERY interesting...just a thought!
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Postby reg613 » Mon Dec 21, 2009 2:28 pm

This quote is disturbing:

"Hell hath no fury like a researcher proven wrong or disenfranchised. "

It is not disturbing because of what it says but rather because the person saying it really believes it's valid.

Like, ummm, research is many times supposed to prove something is NOT the way to go...! Forcing a hypothesis and using millions of dollars to do so because you have "devoted yourself" to something for years is FRAUD. It's also demented and pathetic.

My son devoted himself to MS for 15 years before he died and he wanted to be rid of it... So why do researchers want it around? Why not get a lesion of your own and see what it feels like?

This article is another set of applied brakes. We see here a bout of WWF. It's all fake fighting so we will pick sides. But remember, they're all on the same side. Like politicians. Do you really think they differ and hate each other? No way, it's just sport giving us little guys something to choose from so we can have fun showing off to each other who we chose. Same with cars and religion. Oh god, it's so lame!
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Postby cheerleader » Mon Dec 21, 2009 2:44 pm

reg-
I am so sorry for your loss. You have every right to be angry, and you've articulated this quite well on line with us. Your son was abandoned by the medical profession and the doctors that promised to care for him.

My parents lost their youngest son and my sweet brother the same year my husband Jeff was diagnosed with MS....it was a terrible time for our family.

I found that by coming on here and reaching out and sharing with others, I recovered a sense of peace and a knowledge of our connection as human beings, and healed myself in the process. None of us gets out of here alive. I believe the only purpose we have is in helping others. I say this honestly and with hopes for healing,
Joan

ps...Ashton Embry's son has MS....that's why he's working so hard for others with MS. He's a good man.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Ernst » Mon Dec 21, 2009 3:43 pm

Ashton Embry is the man I admire very much, great scientist, big heart and really caring man. When my wife got her dx, Ashton Embry was our hope - and he has been wonderful advisor. I really hope that someday I just could say "thank you" and shake his hand. His research has made big influence to our life and my wife has been symptom free since her dx, just wonderful.
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
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