This Is MS Multiple Sclerosis Community: Knowledge & Support

Dr. Mowatt-Larssen the Vascular Surgeon from Duke University just let me know that he was interviewed for a piece on CCSVI that will be aired on CBS evening news Tuesday or Wednesday evening. Look out for it. Judi

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RRMS Diagnosed 1997
My house burned down, now I can see the moon.

thanks, Judi...
we'll see if it's finally going to be aired! I have an e-mail in to the producer, I'll see if she can verify the date.
best,
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

My eyes will be glued to CBS news Tuesday and Wednesday !!

ozarkcanoer

Cheer,

Just a question, since I may have missed other info re Dr. Mowatt-Larssen. What connection has he had with CCSVI?

Thanks

Katie,

I think Judipom was referring to this (Another Vascular / Vein Dr. on our side??):

http://www.thisisms.com/ftopicp-80177-.html#80177

I guess she has been working very hard to get the ccsvi word out... and I believe a local newspaper (Chapel Hill ??) did a piece on ccsvi also.

It looks like her hard work is paying off... Which is Great News !!!

Thanks Judipom !!!

(I can even drive to Duke - although, about 7 hours from me - but I'd be glad to go)

Thanks, jr5646,

The incredible work of many to get the word out is awesome! Thank you Judipom, Cheer, and everyone else worldwide! Reminds me of the picture of a tree covered in snow....the power of each individual and the group to create and make things happen.

Dr. M-W said: "Ms. Sheila MacVicar spoke to me by phone as part of her research." If that name is useful for finding out exact time. Also, what are the rules regarding posting an email from a 3rd party? Do I need to get permission? I don't have a telley (by choice) so I'll have to catch the news on youtube or something. Judi

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RRMS Diagnosed 1997
My house burned down, now I can see the moon.

Hi Judi do you mean rules for the site or laws or what? I would be very wary to post private communications without the senders okay, any more than I would post the entire contents of a phone conversation I had with someone in private. Goes to the whole "expectation of privacy" thing, at least in personal non-work related emails. My jaw hangs down with some of the stuff I see on here sometimes. The internet has turned into the Wild West, just let it all hang out, names, addresses, phone numbers, email addresses, what I wear on Thursdays lol.

So legal wise, haven't the foggiest, but I always try to think what the other person would want, and if not sure, ask them.

I'm sure (about the tv stuff) that it will be online in a short amount of time, though YouTube has some pretty good filters on there now for tags especially, but the CBS site might have it up just like it was up on W5 which was way cool.

Mark.

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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

I'm with you, Mark. I don't think emails should be posted without the sender's permission. Before long, doctors aren't going to tell us anything they don't absolutely have to.

Great work Judi and Cheer! I can't wait to see how the US reacts.

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Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

it was't on last night.....Do we have an update on the planned air date?

and if it's on tonight I'll miss it as I have to work, so would somebody be kind enough to post the link to youtube were I can see it?

Thanks
Robin

I'm in touch with the producers-since Jeff and I are interviewed on camera on this one- and it isn't tonight, but will be soon. Promise to let all know as soon as I do-
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Thanks

My wife & I really want to be able to watch together.....

Thanks again
Robin

Thanks Cheer and everyone for letting all of us know...
We will look for it.

Go US,

Canada has the word out and it is making some big changes in the way people are reacting. I get CBS too and would love to watch. Keep us posted.