omg... I also saw Dr Herbert a few years ago and he wanted me on Tysabri right then and there and I said no, I would have to go home and discuss it with my kids and research it. He insisted it was good on his patients, though it was relatively new at the time and I stood my ground and said maybe at another time. I went home to research this new med and found out a few days later it was taken off the market due to associated deaths. I am very very upset that Dr Herbert has known about the CCSVI associations to MS... but not surprised at all. He gave me the impression right off that he was a part of the med companies...how sad. i am also trying to find out how to get tested at NYU if at all possible. My daughter has worked with Dr Herbert to approve his MS Studies, I am asking her if there are better ways to get through to NYU to get tested...jenf wrote:Hi Michelle,
That's unbelievable! And here's another irony of this, which I didn't even connect until I read your post; Dr Herbert was the 3rd Neuro I went to after my introduction to this wonderful disease this past spring. I used the word "was" because I went to him once for a consult, asked him about LDN, and he chuckled and advised me with that gentle "pat on the head" approach that LDN was just "internet stuff". Amazing how this "internet stuff" has almost completely eliminated all of my MS symptoms! But he was more than happy to set me up with Rebif, which I obviously had no interest in.
The fact that he's not only aware of CCSVI, but also worked on the paper, makes me livid as well! I understand why doctors wouldn't want to tell us about CCSVI to not get our hopes up, but if he has FIRST HAND KNOWLEDGE of this, why on earth wouldn't he mention it to his patients so they could chose if they wanted to be screened? Especially if they have one of the highest power MRI's out there? I understand medicine is a money business, but what happened the the "heal the patient' ethics? I have half a mind to schedule another appointment with him so HE can read my MRV!!!
Katie41 wrote:msmything and msh, here is an explanation of MRIs, as I understand them. MRIs of the brain pull apart the water molecules. The hydrogen and oxygen molecules then have to work their way back together to reform the water molecule. Each MRI makes it more difficult for them to do that.
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