Sry so long... I guess I got carried away.
My opinion, for what it's worth... First and foremost - get your space bar fixed (joking - haha..) Secondly, I for one don't really care what the cause of MS is.. I just want some freaking relief...and I'd like to have it yesterday... Years and years of treatment and tracking may or may not prove ccsvi as the trigger for MS, but I don't have that kinda time. I need treated NOW. The current med.s and those who prescribe them just don't get it... the stuff doesn't work....
Seriously though, I think your Dr. would probably be taken a little more seriously if he came here personally and expressed his views / concerns openly.. That is, if he's genuinely concerned with helping. Did he "really" throughly check out the ccsvi research? Did he invest the time? Did he attend a conference that fed him the mis-information? or perhaps heard some bs from a worried pharma rep. who took him out for an expensive dinner? Your Widely Respected Neuro may be getting alittle territorial / defensive ... and rightly so, if he feels the paradigm shift may just leave him out in the cold.. Especially if he's worried all his PT's are going to leave in droves for vascular Doc's. Not only that, but man is he is long winded... My widely respected research neuro gives me 15 minutes (every 6 months) because he has so many PT's to see (or he acts as if he's busy?). I'm lucky to get a script and a pat on the ass...LOL - most importantly, the bill!!! The MS nurses are much better at care than the DR's are anyday..... Your neuro must not have been too busy that day to take that amount of time to discuss ccsvi with you, though? Well at least he discussed it with you... mine completely blew me off when I gave him the research papers...
I'm really beginning to get the feeling that the neuro community is shaking in their shoes.. It seems to me that the more they try to negate the research, the more it adds validity to it...... You very rarely, if ever, hear of a neuro speaking out against a drug company... Hey, I'd love nothing more than to be "Liberated" from my neuro., that's for sure.
Most MS research deals primairly with a chemicals..... Cash Cow comes to mind... God forbid Zamboni finds a relatively simple procedure that brings almost instant relief to the suffering... What do you mean, no need for 40k per year drugs? That won't fly... The neuro's have a good gig going, so why mess with it???.. Countless revolving doors full of PT's that they, in all honesty, can't really help... All they do is write scripts and order some tests... If they loose PT's how the hell are they going to pay for the 500k in student loans?
Why is CAUTION warranted where ccsvi is concerned??? I have yet to hear a reasonable argument as to why caution is warranted? Would someone please enlighten me? and hell yeah, I'm excited... The thought of getting thru the day and not feel as though I've just ran a marathon is quite motivating.... I'm not asking for much here...
You don't need doppler scans to find stenoses... I believe Dr. Dake at Stanford does not use them at all..
Zamboni's theroy contradicts most if not all conventional "wisdom" where MS is concerned... That is the beauty of it.... Those who have completely bought into the "conventional wisdom" and are proven wrong sure are going to feel inferior..
The blind method is a part of the scientific method, used to prevent research outcomes from being influenced by either the placebo effect or the observer bias. To blind a person involved in research (whether a researcher, subject, funder, or other person) is to prevent them from knowing certain information about the process.
- I do believe part of Zamboni's research was "blinded"... when the doppler was proformed, the technician did not know if the subject had MS or not.
- I would say though, that if one was found to have blockage, it's almost certain they have MS... very difficult to blind that in a study that requires surgical intervention.
- Check out the azygos vein - the one that drains blood nearest the spine.
- Lets just take MS out of the equation.. Forget MS completely.. If blockage is found in ANY vein, or artery for that matter, and the technology is readily available to not only find but repair it, shouldn't it be treated? It wolud be cruel to NOT treat, don't you think?
As far as caution goes, those of us who are treated with the extremely expensive drug Tysabri, were told we had a 1-1000 risk of developing the potentially deadly PML brain infection... I believe the number of PT's on TY are around the 60,000 area.. so obviously the reward was greater than the risk... Take those same PT's and treat them for ccsvi - I'm sure they'll sign off on any "risk" and gladly dump TY.
Here's a thought... maybe we should all be lobbying the insurance companies who pay the huge bill to pharma for this potential billions of dollars saving treatment??? $ talks, sadly..
Print this thread for your Dr.