CCSVI: My Widely Respected Neurologists' Suggestion

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby patientx » Wed Dec 23, 2009 9:10 pm

mrsilkykat wrote:I've read this letter on another thread. So I'll ask the question I wanted to ask then: Who is Dr. Ashton Embry and why do we care?

Thanks


He is a well-known geologist.
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Postby patientx » Wed Dec 23, 2009 9:20 pm

CureIous wrote:Hi x, appreciate your comments btw. (as a whole not just one comment only).

Not sure however where anyone, including Zamboni, is saying it WILL stop progression, only that it MIGHT stop progression. I think most of us hope for that at a minimum.


Thanks. True, I might be hard pressed to find where someone has said that this definitely stops MS. But with Zamboni's interviews on CTV, and many of the recent internet postings (not just here), the implication is just that. And with the might qualifier, the risk factor enters into the equation. I think up to this point, many (myself included) believed that having stents put in veins was relatively harmless. Now we're learning that's not always the case.

Ever feel like we keep having the same discussion in here over and over and over?


True, we repeat the same arguments. But, I'm a little slow, and the possibility of needing some add-on drug treatment only occurred to me in recent weeks. But, as Bob pointed out, others on the forum have already raised just that possibility.
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Postby tzootsi » Thu Dec 24, 2009 10:50 am

mrsilkykat wrote:I've read this letter on another thread. So I'll ask the question I wanted to ask then: Who is Dr. Ashton Embry and why do we care?

Thanks


Ashton Embry is not a medical doctor (he is a Canadian research geologist) who's son was dx'd with MS several years ago. Embry spent many many hours pouring thru scientific papers on ms, and eventually devised a diet - the Best Bet Diet - that he had his son follow. His son experienced a dramatic improvement in his symptoms. Aston Embry has spent much of the last several years researching ms (especially 'thinking out of the box' therapies), and has had several papers published. He was in the forefront of the vitamin D link to ms, and was instrumental in inititiating a small study on vitamin D in Montreal.
I feel Ashton Embry is well qualified to make his statements on CCSVI.
Here is a link to his website:
http://www.direct-ms.org/
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Postby welshman » Thu Dec 24, 2009 12:17 pm

Thanks "Chris1967" for starting this forum, it has produced a lot of interesting responses. I don't have MS, it's my wife who suffers with this, but like any other family member I sure want to see her get at least a littler bit better.
Yes, CCSVI seems like a miracle, and as the old saying goes, "if it sounds to good to be true .........", but in this case CCSVI seems to make sense. Whether it's the "chicken or the egg" who knows, but after all the years of research, all the millions of dollars spent without any cause being found, without any cure being seen, then perhaps it is as simple as blocked viens. And that is what we need to get our physicians to agree to, that the ongoing research as to "cause and effect" can continue, but in the meantime, get the sufferers checked out for blockages in the viens and get those opened a.s.a.p. - we need the relief now not after years of clinical trials (whether they be blind, double blind or any other kind of blinded trials).
Again thanks for opening the forum and thanks to all who have provided their input.
Merry Christmas to all and let's hope for a wonderful 2010 with some positive news and fast-tracking of this research.
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Postby Chris1967 » Fri Dec 25, 2009 2:34 pm

Sure thing Welshman. Im very hopeful we are on to something here and it's not going to be one of those 'to good to be true' things. I cant type like alot of you can here, aggrevates my minds something awful.

I will say that I am convinced this is a real breakthrough, I remain uplifted and happy with this discovery and we just have to push and push hard to make sure this doesnt become controlled by the FDA or any MS Societies or Pharmaceutical Companies......

MERRY CHRISTMAS ALL!
MY WIFE AND I ARE OFF TO CELEBRATE WITH FAMILY
XOX
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Postby thornyrose76 » Sun Dec 27, 2009 12:38 pm

welshman wrote:Thanks "Chris1967" for starting this forum, it has produced a lot of interesting responses. I don't have MS, it's my wife who suffers with this, but like any other family member I sure want to see her get at least a littler bit better.
Yes, CCSVI seems like a miracle, and as the old saying goes, "if it sounds to good to be true .........", but in this case CCSVI seems to make sense. Whether it's the "chicken or the egg" who knows, but after all the years of research, all the millions of dollars spent without any cause being found, without any cure being seen, then perhaps it is as simple as blocked viens. And that is what we need to get our physicians to agree to, that the ongoing research as to "cause and effect" can continue, but in the meantime, get the sufferers checked out for blockages in the viens and get those opened a.s.a.p. - we need the relief now not after years of clinical trials (whether they be blind, double blind or any other kind of blinded trials).
Again thanks for opening the forum and thanks to all who have provided their input.
Merry Christmas to all and let's hope for a wonderful 2010 with some positive news and fast-tracking of this research.

You simply make sense in my opinion and I couldn't agree more... :)
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