ozarkcanoer wrote:Blinded studies are good !! But it seems to me that when the study is unblinded, then the participants should be allowed to get their study results. What if a control was discovered to have a brain tumor ? Or some other problem that can be detected by MRI ? What if a person with MS is found to have severe stenosis ?
In Canada, our Freedom of Information Act gives us the absolute right to review any files on ourselves (and have copies) that are not subject to national security restrictions. You probably have that same right in the US. I have always requested, and received copies of all MRIs, reports, etc., though, my last MRI (on CD) cost me $60! Coulda got the Beatles re-mastered box set and got some change back for that. Gouged!
If they saw a tumour in an MRI, that would have
to be revealed immediately. They would just have to remove that file from the study. If it was something else, like a venous angioma, or such, it could probably wait a few months until the study was concluded, or again, remove that subject from the study.
My name is not really Johnson. MSed up since 1993