I have been tested for CCSVI last week in Paris by Dr Franceschi.
I have a problem with both internal jugular veins ( no blood flow). I'm advised to try inclined bd therapy, to see if this can improve some symptoms. Then I could have a venography before intervention (balooning).
One of my sister also as MS, but not the same kind (i have relapsing MS, without any flair-up for 8 years
). My sister has progressive MS (EDSS 6.5).
So my father as asked Dr Franceschi about my sister. The problem is that veins may be damaged in many areas (sometimes even missing). So it is presently difficult to help these patients.
But research on CCSVI is really new and promising. Maybe doctors will be able to help more patients (with specific techniques or materials) in the near futur.
Best wishes for the coming new year