For those who have gone/are going to Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Alica » Fri Jan 01, 2010 8:41 pm

Johnson wrote:You can always hit the south of France for the Vendange. Red wine interferes with iron absorption, you know... (I was so pleased to learn that! And coffee too!) A nice bottle of Macon would do the trick for a celebration.


That place is heaven on earth itself. We did some serious wine tasting while staying in St.Tropez. Unfortunately, since vertigo took over my life, I’ve had to stay away from all natural iron deposit absorbers, except coffee.
Alica
Family Member
 
Posts: 57
Joined: Thu Nov 19, 2009 4:00 pm

Advertisement

Postby Johnson » Fri Jan 01, 2010 9:44 pm

Alica wrote:
Johnson wrote:You can always hit the south of France for the Vendange. Red wine interferes with iron absorption, you know... (I was so pleased to learn that! And coffee too!) A nice bottle of Macon would do the trick for a celebration.


That place is heaven on earth itself. We did some serious wine tasting while staying in St.Tropez. Unfortunately, since vertigo took over my life, I’ve had to stay away from all natural iron deposit absorbers, except coffee.

I'm straying off-topic, sorry, but I still take red wine regularly - despite my own vertigo.

I was just looking at Google Earth at Vergisson, where I picked grapes one autumn. It is an enchanting area.

I'm off to look up Katowice on Google Earth. It makes me dizzy.
My name is not really Johnson. MSed up since 1993
User avatar
Johnson
Family Elder
 
Posts: 979
Joined: Tue Dec 01, 2009 4:00 pm
Location: Ucluluet, BC

Postby Alica » Sat Jan 02, 2010 7:41 pm

I still take red wine regularly - despite my own vertigo.


I'm jealous. :cry:
Alica
Family Member
 
Posts: 57
Joined: Thu Nov 19, 2009 4:00 pm

Reply from Dr. Simka

Postby cervin » Sat Jan 02, 2010 9:01 pm

i heard from dr. Simka in the middle of December. i'm on the waiting list for May 2010!
Hip-hip Hooray!!
If i could jump up and down- i would!
-ceci
User avatar
cervin
Family Member
 
Posts: 32
Joined: Mon Nov 23, 2009 4:00 pm

Postby Alica » Sat Jan 02, 2010 10:30 pm

cervin

Great news! Congratulations! :D
Alica
Family Member
 
Posts: 57
Joined: Thu Nov 19, 2009 4:00 pm

Poland

Postby Dovechick » Sun Jan 03, 2010 12:55 am

Great news Cervin.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
User avatar
Dovechick
Family Elder
 
Posts: 349
Joined: Sun Feb 12, 2006 4:00 pm
Location: Sussex UK

Postby greenandchic » Mon Jan 04, 2010 2:09 pm

I am on the waiting list for December 2010!

My only question is, do I get the ultrasound done here to even make sure I have CCSVI or do I wait until I go to Poland?
User avatar
greenandchic
Family Member
 
Posts: 45
Joined: Sat Dec 12, 2009 4:00 pm
Location: Portland, Oregon

to Greenchick from Dovechick

Postby Dovechick » Mon Jan 04, 2010 3:04 pm

Hi Greenchick,
In my opinion if you have MS you are more of less certain to have stenoses or some malformation of valves... The problem with having the ultrasounds done in this country is that the operators need to be trained to see.
My daughter is going to have the tests done in Poland...
I suggest you read all about CCSVI and see if you can identify with it yourself, another thing you might try is Inclined Bed Therapy, it is should help MS symptoms by improving cirulation. See here for instructions.
http://www.thisisms.com/ftopict-8535.html
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
User avatar
Dovechick
Family Elder
 
Posts: 349
Joined: Sun Feb 12, 2006 4:00 pm
Location: Sussex UK

Postby greenandchic » Mon Jan 04, 2010 3:10 pm

Thanks Dovechick!

I was concerned that the "regular" ultrasound techs may not be trained to see unless I get it done at Stanford.

So I guess everything is done in Poland including the actual diagnosis...

Thanks!
User avatar
greenandchic
Family Member
 
Posts: 45
Joined: Sat Dec 12, 2009 4:00 pm
Location: Portland, Oregon

Postby ozarkcanoer » Mon Jan 04, 2010 4:52 pm

Hi greenandchic,

I think the doctors in Poland are probably second only to Zamboni's team in diagnosing CCSVI, so you will be in good hands !! Dr Simka literally "wrote the book" on the doppler ultrasound procedure, LOL :

http://csvi-ms.net/en/content/how-perform-doppler-examination-multiple-sclerosis-patient-dr-simka

ozarkcanoer
User avatar
ozarkcanoer
Family Elder
 
Posts: 1273
Joined: Thu Oct 15, 2009 3:00 pm
Location: St. Louis, Missouri

Postby greenandchic » Tue Jan 05, 2010 1:31 am

Thanks for the link, ozarkcanoer!
User avatar
greenandchic
Family Member
 
Posts: 45
Joined: Sat Dec 12, 2009 4:00 pm
Location: Portland, Oregon

Postby colmmc » Wed Jan 06, 2010 5:10 am

Hi
A bit off topic but I didn't know where I should put it.A friend has just emailed me asking why are we going to Poland is Dr Zamboni not doing it in Italy?Is he still doing it?

colmmc
User avatar
colmmc
Family Member
 
Posts: 73
Joined: Tue Dec 15, 2009 4:00 pm
Location: Knutsford England

Not at the moment

Postby Dovechick » Wed Jan 06, 2010 5:18 am

colmmc wrote:Hi
A bit off topic but I didn't know where I should put it.A friend has just emailed me asking why are we going to Poland is Dr Zamboni not doing it in Italy?Is he still doing it?

colmmc

From what I gather from information posted by others he is not doing it at the moment either. Something to do with funding and clinical trials, I think.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
User avatar
Dovechick
Family Elder
 
Posts: 349
Joined: Sun Feb 12, 2006 4:00 pm
Location: Sussex UK

Postby Jaguar » Wed Jan 06, 2010 6:39 am

My understanding is that Italy has a healthcare system similar to Canada's: you can't come to the country and pay for medical service - you have to be a part of the health system - i.e. you have a healthcare card
User avatar
Jaguar
Family Member
 
Posts: 90
Joined: Fri Dec 11, 2009 4:00 pm
Location: Montreal

Previous

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users