This Is MS Multiple Sclerosis Community: Knowledge & Support

That place is heaven on earth itself. We did some serious wine tasting while staying in St.Tropez. Unfortunately, since vertigo took over my life, I’ve had to stay away from all natural iron deposit absorbers, except coffee.

I'm straying off-topic, sorry, but I still take red wine regularly - despite my own vertigo.

I was just looking at Google Earth at Vergisson, where I picked grapes one autumn. It is an enchanting area.

I'm off to look up Katowice on Google Earth. It makes me dizzy.

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My name is not really Johnson. MSed up since 1993

I'm jealous.

i heard from dr. Simka in the middle of December. i'm on the waiting list for May 2010!
Hip-hip Hooray!!
If i could jump up and down- i would!
-ceci

cervin

Great news! Congratulations!

Great news Cervin.

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Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

I am on the waiting list for December 2010!

My only question is, do I get the ultrasound done here to even make sure I have CCSVI or do I wait until I go to Poland?

Hi Greenchick,
In my opinion if you have MS you are more of less certain to have stenoses or some malformation of valves... The problem with having the ultrasounds done in this country is that the operators need to be trained to see.
My daughter is going to have the tests done in Poland...
I suggest you read all about CCSVI and see if you can identify with it yourself, another thing you might try is Inclined Bed Therapy, it is should help MS symptoms by improving cirulation. See here for instructions.
http://www.thisisms.com/ftopict-8535.html

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Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

Thanks Dovechick!

I was concerned that the "regular" ultrasound techs may not be trained to see unless I get it done at Stanford.

So I guess everything is done in Poland including the actual diagnosis...

Thanks!

Hi greenandchic,

I think the doctors in Poland are probably second only to Zamboni's team in diagnosing CCSVI, so you will be in good hands !! Dr Simka literally "wrote the book" on the doppler ultrasound procedure, LOL :

http://csvi-ms.net/en/content/how-perform-doppler-examination-multiple-sclerosis-patient-dr-simka

ozarkcanoer

Thanks for the link, ozarkcanoer!

Hi
A bit off topic but I didn't know where I should put it.A friend has just emailed me asking why are we going to Poland is Dr Zamboni not doing it in Italy?Is he still doing it?

colmmc

From what I gather from information posted by others he is not doing it at the moment either. Something to do with funding and clinical trials, I think.

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Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

My understanding is that Italy has a healthcare system similar to Canada's: you can't come to the country and pay for medical service - you have to be a part of the health system - i.e. you have a healthcare card