I'm in St Louis and I contacted my own neurologist and I contacted the Hope Center for Neurological Disdorders at the Washington University Medical School. I also contacted a neuroradiologist at Barnes who is also a professor of medicine at the medical school. I contacted all these people in October and November 2009. There is some interest in CCSVI among all these doctors and researchers, but they are taking a wait and see more evidence attitude. My own neurologist offered to order an MRV for me last week. I decided just last night to take him up on his offer but when I tried to call his office I found out that he is on vacation until January !!
There is a neurologist at St Louis University, Dr Stephen Brenner, who seems favorable toward the CSVI hypothesis so you might give him a call. If you find out anything, please let me know !! You can either post here or PM me.