I am sending you the biggest cyber hug ever. You cannot imagine how thrilled I am that you have preceded me with the phlebotomy and that you are having those kind of results. I had practically given up hope, because my deterioration since menopause has been phenomenal and very very depressing. And the weird thing is that I have been studying metal chelation for years! I tested very very poisoned in mercury many years ago and have tried every form of chelation on the market except EDTA IV because EDTA does not chelate mercury very well and I was afraid of doing IVs because I had done glutathione IVs and had a very bad reaction, more neurological damage from it. But I can list every chelator that I have ever tried, none of which worked, but each time I would do it I would have certain reactions that would verify that my problem had to be metal overload. What you are describing is metals moving around... metals coming out of joints, metals coming out of storage sites... they tend to hurt as they come out, they tend to cause little nervous tics and twitches. I am surprised however by the brain reaction, because I would not expect the phlebotomy to move metals out of the brain, but what you are describing is definitely metal removal. The only time I've ever had those brain feelings during chelation was when I did alpha lipoic acid, which is both lipid and water soluble so that it crosses the blood brain barrier. Unfortunately, ALA gives me incredible anxiety and nightmares, so I gave up on it anyway. The whole thought that you can get garbage out of the brain by doing phlebotomy is astounding. I am hoping it will remove the remnants of Myodil, which I still have in my central nervous system because I had a myleogram back in 1983... long story, but they were looking for a spinal cord tumor, when my first symptoms of MS was Lhermette syndrome. That oil is still in my central nervous system, because the spinal system is a closed system and normally it is very hard to get anything out of it... so maybe the phlebotomy will move all kinds of toxins out.
I should be getting the results of my test for hemochromatosis either tomorrow or Friday and I will let you know the results, but I am virtually certain I have at least one genetic mutation if not two. Also, what is concerning me is that this may be the answer for everyone. I don't understand why they are not testing for hemochromatosis before they are doing the surgery. Because if you have hemochromatosis, you will keep collecting iron and the vein clogging will recur. Zamboni was a vascular surgeon, and when you are a hammer, everything looks like a nail. This solution may not be the right solution... I don't know that for sure of course, but personally I would rather do a series of phlebotomies and see how I feel rather than putting stents in my veins... this is so hopeful, I have a friend that is now an adult care home with a baclofen pump in her spine, and she too has a Celtic background like everybody else I ask with MS. Like me, she is feeling no hope for ever regaining mobility. But the body has an amazing ability to heal if you get rid of the root cause of dysfunction.
I was also anemic as a teenager and in my early 20s. It was probably iron loading anemia rather than a lack of iron. There is a person on the adult chelation list that is now so sick from iron injections she cannot function... overwhelming fatigue and joint pain. I'm sorry, but I get so fed up with idiotic doctors that do not understand how devastating metals are. All heavy metals, including iron because it is a heavy metal especially in an overload condition, do much the same thing. They shut down the liver detox pathways, they make you resistant to insulin, they change the body pH, they displace nutrient elements, they interfere with neurotransmitter production, they interfere with enzymes, they interfere with osteoblast production so that you end up with osteoporosis... the list goes on and on and on. But truthfully, iron was not on my radar, I have been concentrating on mercury and wondering why the hell I could never get rid of it. My guess is that the iron came first, or mercury and iron in combination is more damaging than each alone. That is the case usually with mercury and lead combined...
I may have a hard time convincing a doctor to instigate phlebotomy, I will have to see once I get the genetic mutation test. If you don't mind, I would print out your testimony when I get my test. My Dr. is Irish, right from Ireland, and he didn't know about the Irish connection in hemochromatosis! It's unreal, it is the most common genetic mutation out there, and the bloody doctors are ignorant. Marie Warder was simply brilliant, and has much the same frustrations, that they don't test. Like you, I imagine I will feel angry. I have been in such pain, and my life was devastated by this, completely devastated. All my hopes and dreams have been shattered, and life has been mere existence. The isolation of not being able to participate in life has been death by inches. So I know where you're coming from, boy do I ever. I cannot thank you enough for going out and doing a blood donation and then reporting on it. It's like you are giving me the gift of mental health! I will report as soon as I get my test back. Your poor sister, the whole thought of iron injections is so crazy and they are still doing it! But what do you expect, doctors told my mother when she was suffering from depression back in the 1960s to take up smoking, that it would calm her nerves. Doctors are the fourth leading cause of death in the United States. They just about killed me with their MS investigations, until I said no more.