We know that when there is any excess iron showing in labs that the brain is probably involved. Years ago we used to think that the liver was the first to load and the first to unload during treatment. Now we think that of the brain.
Medicine knows something about ferritin that gets in the way i.e. that it is acute phase reactive. This means that is can be temporarily elevated by a passing infection or inflammation. So when this is the only lab value that is elevated, doctors tend to discount this test.
Ferritin causes brain symptoms at a level above 50. For your case, phlebotomy should continue until you ferritin reaches 10 and then you will need a maintenance schedule custom fit to your metabolism to keep that level.
For years they told us that everyone was born with a certain amount of brain cells and that through life's attrition they are drawn down. The latest information is that the brain does regenerate cells and even in the very elderly.
There is a brain iron medication that will go into clinical trials at the end of this year. Initially it only for Alzheimer's patients, but eventually all iron brain involved patients will benefit. Anavex Pharmaceutical has a new approach to brain that draws excess iron from the brain. The compounds with which they are working have done wonderfully well in animal trials.
Keep your fingers crossed, I think that we can see a light at the end of the tunnel.
Steve Barfield - President
Iron Overload Diseases Assn.
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