ForeverSpring wrote:You have motivated me to take action on this.
Due to surgery, I have not had a period for over 30 years, so cannot use that as an indicator.
Yesterday I made an appointment for March 1 to donate blood when the blood drive comes to town. I am curious to see how it will affect me. It has been years since my last blood donation, and I never paid any attention to that.
Before going to the local clinic to request the tests for iron overload, it would be helpful to have some “reason” in their eyes for doing so. March 1 is only four weeks away.
Meanwhile, I have stopped taking my daily multi-vitamin/multi-mineral tablet, which contains 50% RDA for iron. I had known the iron was in there, but never before realized the harm it could do.
Since it is so common and so easily overlooked, the iron-overload question is one that everybody should investigate. Otherwise, there is no way of knowing you have the overload, until after serious damage has been done.
Thanks for presenting your experiences and information! Plenty to think about!
Why did you ask about sensitivity to metal in cheap jewelry?
I have had this, esp in the past (don't wear any jewelry now, so not sure).
Daon't recall seeing this mentioned in any porphyric stuff I've read.
And the small blisters, I get them sometimes, esp when getting all the other symptoms of porphyria.
BUT again, MS could be iron dysregulation, ie, too high OR too low.
As I say, my recent TIBC was too low, have a script to do all irons again, but fasting this time. Hope to do it 2/1/10; and I have a history consistent with porphyria, and tests for porphyria were inconclusive (one part yes, one part no show), but is an extraordinarily difficult test to get done, you should be experiencing an attack when testing!
Am exploring just getting the gene test done.
shye wrote:Yes Bethr, even when I wore gold rimmed eye glasses they would leave a very dark ridge where touched my face!
Again, where are your lesions? This could be an exciting survey-to correlate brain lesions with hemachromatosis, and/or porphyria.
Just tell your doctor about CCSVI and the fact that iron is implicated. You need to know whether you need to take the iron in your vitamins. It's a fair enough request.
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