W5 follow-uo

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

W5 follow-uo

Postby esta » Wed Dec 30, 2009 10:58 am

I'm new here but have managed through this thread and all of you wonderful people who have posted so much info about your experiences to write Dr. Simka and to receive a reply that I am scheduled for the month of June!

Then I thought of writing W5 to see if they'd be interested in a Canadian going to Poland, and they were if I filmed the trip myself, which we are working on...
kind of exciting!
My thoughts were of Erika from Slovacia, and her bravery and filming of her groundbreaking procedure, and of Cheeleader and her words of not just finding a lifebooat but building it, did far more than prompt me tp go a step farther than I ever dreamed, it inspired me to be a lobbyist, however small my contribution, for us all will be :) ...
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Postby TFau » Wed Dec 30, 2009 11:11 am

Way to go Esta! I can't wait to see your footage (and veinage!).

Theresa
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Postby IbRiz » Wed Dec 30, 2009 11:44 am

Super idea Esta!!!

Good luck with it.

christian
RRMS Dx'd 2009
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Postby Rainbolt » Wed Dec 30, 2009 12:09 pm

:D WOOT WOOT - can't wait to see it... can't wait to go myself if we find the means :)


Aggressive RRMS
DX 1996 onset 1995
treatment - Tysabri
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Postby BT » Fri Jan 01, 2010 12:10 am

Please let us know how u go about making arrangements and costs involved - my brother is hoping to take my sister-in-law and we are in Ontario Canada - so your info would really be helpful!!!
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